Quality of life of patients with spinal muscular atrophy: A systematic review

Quality of life of patients with spinal muscular atrophy: A systematic review

To systematically review the literature of quality of life (QoL) of patients with spinal muscular atrophy (SMA), a rare, autosomal-recessive neuromuscular disease associated with extensive morbidity and elevated mortality. We searched Embase, Web of Science, and PubMed for full-text, English-languag...

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Veröffentlicht in:European journal of paediatric neurology 2019-05, Vol.23 (3), p.347-356
Hauptverfasser: Landfeldt, Erik, Edström, Josefin, Sejersen, Thomas, Tulinius, Már, Lochmüller, Hanns, Kirschner, Janbernd
Format: Artikel
Sprache:eng
Schlagworte:
Child
Decision making
Europe
Health policy
Humans
Muscular Atrophy, Spinal
Neurologi
Neurology
Neuromuscular diseases
Pediatrics
Pediatrik
Quality of Life
SMA
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Beschreibung
Zusammenfassung:To systematically review the literature of quality of life (QoL) of patients with spinal muscular atrophy (SMA), a rare, autosomal-recessive neuromuscular disease associated with extensive morbidity and elevated mortality. We searched Embase, Web of Science, and PubMed for full-text, English-language articles (published between January 1, 2000 and July 31, 2018) reporting results from studies of QoL of patients with SMA. We excluded review and editorial articles, studies reporting results for samples comprising
ISSN:1090-3798
1532-2130
DOI:10.1016/j.ejpn.2019.03.004