Ethics of Buying DNA

DNA databases have significant commercial value. Direct-to-consumer genetic testing companies have built databanks using samples and information voluntarily provided by customers. As the price of genetic analysis falls, there is growing interest in building such databases by paying individuals for t...

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Veröffentlicht in:Journal of bioethical inquiry 2022-09, Vol.19 (3), p.395-406
Hauptverfasser: Koplin, Julian J., Skeggs, Jack, Gyngell, Christopher
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Skeggs, Jack
Gyngell, Christopher
description DNA databases have significant commercial value. Direct-to-consumer genetic testing companies have built databanks using samples and information voluntarily provided by customers. As the price of genetic analysis falls, there is growing interest in building such databases by paying individuals for their DNA and personal data. This paper maps the ethical issues associated with private companies paying for DNA. We outline the benefits of building better genomic databases and describe possible concerns about crowding out, undue inducement, exploitation, and commodification. While certain objections deserve more empirical and philosophical investigation, we argue that none currently provide decisive reasons against using financial incentives to secure DNA samples.
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subjects DNA data banks
Ethics
Human genetics
Medical Law
Medicine
Medicine & Public Health
Moral and ethical aspects
Purchasing
Symposium: Emerging Technologies
Theory of Medicine/Bioethics
title Ethics of Buying DNA
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