Ethics of Buying DNA

DNA databases have significant commercial value. Direct-to-consumer genetic testing companies have built databanks using samples and information voluntarily provided by customers. As the price of genetic analysis falls, there is growing interest in building such databases by paying individuals for t...

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Veröffentlicht in:Journal of bioethical inquiry 2022-09, Vol.19 (3), p.395-406
Hauptverfasser: Koplin, Julian J., Skeggs, Jack, Gyngell, Christopher
Format: Artikel
Sprache:eng
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Zusammenfassung:DNA databases have significant commercial value. Direct-to-consumer genetic testing companies have built databanks using samples and information voluntarily provided by customers. As the price of genetic analysis falls, there is growing interest in building such databases by paying individuals for their DNA and personal data. This paper maps the ethical issues associated with private companies paying for DNA. We outline the benefits of building better genomic databases and describe possible concerns about crowding out, undue inducement, exploitation, and commodification. While certain objections deserve more empirical and philosophical investigation, we argue that none currently provide decisive reasons against using financial incentives to secure DNA samples.
ISSN:1176-7529
1872-4353
1872-4353
DOI:10.1007/s11673-022-10192-w