Multinational descriptive analysis of the real‐world burden of headache using the Migraine Buddy application

Background and purpose A large proportion of headache sufferers do not routinely seek medical care. App‐based technologies permit the collection of real‐world data over time and between countries that can help assess true burden of headache. This study used a mobile phone application to collect information on the real‐world burden of self‐diagnosed headache and to describe its impact on daily life in headache sufferers who do not routinely seek medical advice. Methods This retrospective, non‐interventional, cross‐sectional study analysed self‐reported data from users of the ‘Migraine Buddy’ app. The main objective was to describe self‐reported characteristics of headache and migraine (triggers, duration, frequency), treatment patterns and impact on daily activity in headache sufferers from Australia, Brazil, France, Germany and Japan. Data including demographics, self‐diagnosed episode type (headache/migraine), duration, potential triggers and impact on daily activity are reported. All analyses were exploratory and performed per country. Results Self‐reported data were collected from 60,474 users between August 2016 and August 2018. Approximately 90% of users were females; >60% were aged 24–45 years. Over one‐third of users reported having two to five episodes of headache or migraine per month; impact included impaired concentration, being slower and missing work or social activities. Variations across countries were observed; within countries, episode characteristics were very similar for self‐diagnosed headache versus migraine. Conclusions Headache tracking was used to describe the experience, impact and self‐management approaches of migraine and headache sufferers in a real‐world setting. Headache disorders present a range of important issues for patients that deserve more study and reinforce the need for better approaches to management. Headache tracking with an app was used to describe the experience, impact and self‐management approaches of migraine and headache sufferers in a real‐world setting. Headache disorders present a range of important issues for patients that deserve more study and reinforce the need for better approaches to management.