Excavating the Personal Genome: The Good Biocitizen in the Age of Precision Health

The rise of genomic technologies has catalyzed shifts in the health care landscape through the commercialization of genome sequencing and testing services in the genomics marketplace. The development of consumer genomics into a growing array of information technologies aimed at collecting, curating,...

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Veröffentlicht in:The Hastings Center report 2020-05, Vol.50 (S1), p.S54-S61
1. Verfasser: Lee, Sandra Soo‐Jin
Format: Artikel
Sprache:eng
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Zusammenfassung:The rise of genomic technologies has catalyzed shifts in the health care landscape through the commercialization of genome sequencing and testing services in the genomics marketplace. The development of consumer genomics into a growing array of information technologies aimed at collecting, curating, and broadly sharing personal data and biological materials reconstitutes the meaning of health and reframes patients into biocitizens. In this context, the good biocitizen is expected to assume personal responsibility for health through consumption of genomic information and acquiescence to public and private efforts at data surveillance and aggregation. These shifts raise fundamental questions about how competing interests of the public, the state, and corporate entities will be reconciled and what trade‐offs are demanded for the promise of precision health.
ISSN:0093-0334
1552-146X
DOI:10.1002/hast.1156