“I'm essentially his pancreas”: Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes

“I'm essentially his pancreas”: Parent perceptions of diabetes burden and opportunities to reduce burden in the care of children <8 years old with type 1 diabetes

ABSTRACT Background Across all age groups, management of type 1 diabetes (T1D) places substantial responsibility and emotional burden upon families. This study explored parent perceptions of the burdens of caring for very young children with T1D. Methods Semi‐structured qualitative interviews were c...

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Veröffentlicht in:Pediatric diabetes 2020-03, Vol.21 (2), p.377-383
Hauptverfasser: Commissariat, Persis V., Harrington, Kara R., Whitehouse, Amanda L., Miller, Kellee M., Hilliard, Marisa E., Van Name, Michelle, DeSalvo, Daniel J., Tamborlane, William V., Anderson, Barbara J., DiMeglio, Linda A., Laffel, Lori M.
Format: Artikel
Sprache:eng
Schlagworte:
adolescent
blood glucose
caregivers
Child
Child, Preschool
Cost of Illness
Diabetes Mellitus, Type 1 - psychology
Diabetes Mellitus, Type 1 - therapy
Female
glycated hemoglobin A
Humans
Hypoglycemic Agents - administration & dosage
Insulin - administration & dosage
Interviews as Topic
Male
Parenting
parents
Parents - psychology
Psychological Distress
Qualitative Research
quality of life
type 1 diabetes mellitus
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Zusammenfassung:ABSTRACT Background Across all age groups, management of type 1 diabetes (T1D) places substantial responsibility and emotional burden upon families. This study explored parent perceptions of the burdens of caring for very young children with T1D. Methods Semi‐structured qualitative interviews were conducted with parents (85% mothers) of 79 children with T1D, aged 1 to
ISSN:1399-543X
1399-5448
DOI:10.1111/pedi.12956