Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)
Background The majority of persons with Huntington disease (HD) experience mental health symptoms. Patient-reported outcome (PRO) measures are capable of capturing unobservable behaviors and feelings relating to mental health. The current study aimed to test the reliability and responsiveness to sel...
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Veröffentlicht in: | Quality of life research 2020-12, Vol.29 (12), p.3419-3439 |
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creator | Carlozzi, Noelle E. Boileau, Nicholas R. Roché, Matthew W. Ready, Rebecca E. Perlmutter, Joel S. Chou, Kelvin L. Barton, Stacey K. McCormack, Michael K. Stout, Julie C. Cella, David Miner, Jennifer A. Paulsen, Jane S. |
description | Background
The majority of persons with Huntington disease (HD) experience mental health symptoms. Patient-reported outcome (PRO) measures are capable of capturing unobservable behaviors and feelings relating to mental health. The current study aimed to test the reliability and responsiveness to self-reported and clinician-rated change over time of Neuro-QoL and PROMIS mental health PROs over the course of a 24-month period.
Methods
At baseline, 12-months, and 24-months, 362 participants with premanifest or manifest HD completed the Neuro-QoL Depression computer adaptive test (CAT), PROMIS Depression short form (SF), Neuro-QoL Anxiety CAT, PROMIS Anxiety SF, PROMIS Anger CAT and SF, Neuro-QoL Emotional/Behavioral Dyscontrol CAT and SF, Neuro-QoL Positive Affect and Well-Being CAT and SF, and Neuro-QoL Stigma CAT and SF. Participants completed several clinician-administered measures at each time point, as well as several global ratings of change at 12- and 24-months. Reliability (test-retest reliability and measurement error) and responsiveness (using standardized response means and general linear models) were assessed.
Results
Test-retest reliability and measurement error were excellent for all PROs (all ICC ≥ .90 for test-retest reliability and all SEM percentages ≤ 6.82%). In addition, 12- and 24-month responsiveness were generally supported for the Neuro-QoL and PROMIS mental health PROs; findings relative to clinician-rated anchors of change (e.g., SRMs for the group with declines ranged from .38 to .91 for 24-month change and .09 to .45, with the majority above .25 for 12-month change) were generally more robust than those relative to self-reported anchors of change (e.g., SRMs for the group with declines ranged from .02 to .75, with the majority above .39 for 24-month change and .09 to .45, with the majority above .16 for 12-month change).
Conclusions
The Neuro-QoL and PROMIS mental health PROs demonstrated strong psychometric reliability, as well as responsiveness to self-reported and clinician-rated change over time in people with HD. |
doi_str_mv | 10.1007/s11136-020-02596-1 |
format | Article |
fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_7686156</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2435530864</sourcerecordid><originalsourceid>FETCH-LOGICAL-c474t-7e02f4a2851e0b7a5f2e7e1e1611d73279c96faca2b194b4551b1e0fa97d1fd93</originalsourceid><addsrcrecordid>eNp9kU1v1DAQhi0EokvhD3BAlriUQ1p_JHZ8QUIFupW2FAqcLSeZbFwl9mI7i_pT-Ld4u6V8HLBkjax55p0Zvwg9p-SYEiJPIqWUi4Iwkm-lREEfoAWtJC-YKNVDtCBKsELxkh-gJzFeE0JqRdhjdMBZTTkTfIF-XEHceBftFhzEiJPH7WDcGrDfQsDJToCN63CCmIoAu4ADjNY0drTpBvsepwHwx6vLi_PPt-QHmIMvPvkVnsAlM-IBzJiG_DJxDhCxdXgDIeam-LvNieXsknXr5B3ubMwU4KPl21dP0aPejBGe3cVD9PX9uy-ny2J1eXZ--mZVtKUsUyGBsL40rK4okEaaqmcggQIVlHaSM6laJXrTGtZQVTZlVdEmk71RsqN9p_gher3X3czNBF2bhw5m1JtgJxNutDdW_51xdtBrv9VS1IJWIgsc3QkE_23OH6QnG1sYR-PAz1GzklcVJ7UoM_ryH_Taz8Hl9TIleT6K7Si2p9rgYwzQ3w9Did45r_fO6-y8vnVe01z04s817kt-WZ0BvgdiTmWDw-_e_5H9CbBJu68</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2473333924</pqid></control><display><type>article</type><title>Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)</title><source>Jstor Complete Legacy</source><source>MEDLINE</source><source>Springer Nature - Complete Springer Journals</source><creator>Carlozzi, Noelle E. ; Boileau, Nicholas R. ; Roché, Matthew W. ; Ready, Rebecca E. ; Perlmutter, Joel S. ; Chou, Kelvin L. ; Barton, Stacey K. ; McCormack, Michael K. ; Stout, Julie C. ; Cella, David ; Miner, Jennifer A. ; Paulsen, Jane S.</creator><creatorcontrib>Carlozzi, Noelle E. ; Boileau, Nicholas R. ; Roché, Matthew W. ; Ready, Rebecca E. ; Perlmutter, Joel S. ; Chou, Kelvin L. ; Barton, Stacey K. ; McCormack, Michael K. ; Stout, Julie C. ; Cella, David ; Miner, Jennifer A. ; Paulsen, Jane S.</creatorcontrib><description>Background
The majority of persons with Huntington disease (HD) experience mental health symptoms. Patient-reported outcome (PRO) measures are capable of capturing unobservable behaviors and feelings relating to mental health. The current study aimed to test the reliability and responsiveness to self-reported and clinician-rated change over time of Neuro-QoL and PROMIS mental health PROs over the course of a 24-month period.
Methods
At baseline, 12-months, and 24-months, 362 participants with premanifest or manifest HD completed the Neuro-QoL Depression computer adaptive test (CAT), PROMIS Depression short form (SF), Neuro-QoL Anxiety CAT, PROMIS Anxiety SF, PROMIS Anger CAT and SF, Neuro-QoL Emotional/Behavioral Dyscontrol CAT and SF, Neuro-QoL Positive Affect and Well-Being CAT and SF, and Neuro-QoL Stigma CAT and SF. Participants completed several clinician-administered measures at each time point, as well as several global ratings of change at 12- and 24-months. Reliability (test-retest reliability and measurement error) and responsiveness (using standardized response means and general linear models) were assessed.
Results
Test-retest reliability and measurement error were excellent for all PROs (all ICC ≥ .90 for test-retest reliability and all SEM percentages ≤ 6.82%). In addition, 12- and 24-month responsiveness were generally supported for the Neuro-QoL and PROMIS mental health PROs; findings relative to clinician-rated anchors of change (e.g., SRMs for the group with declines ranged from .38 to .91 for 24-month change and .09 to .45, with the majority above .25 for 12-month change) were generally more robust than those relative to self-reported anchors of change (e.g., SRMs for the group with declines ranged from .02 to .75, with the majority above .39 for 24-month change and .09 to .45, with the majority above .16 for 12-month change).
Conclusions
The Neuro-QoL and PROMIS mental health PROs demonstrated strong psychometric reliability, as well as responsiveness to self-reported and clinician-rated change over time in people with HD.</description><identifier>ISSN: 0962-9343</identifier><identifier>EISSN: 1573-2649</identifier><identifier>DOI: 10.1007/s11136-020-02596-1</identifier><identifier>PMID: 32813263</identifier><language>eng</language><publisher>Cham: Springer International Publishing</publisher><subject>Adult ; Female ; Humans ; Huntington Disease - psychology ; Huntingtons disease ; Male ; Medicine ; Medicine & Public Health ; Mental health ; Mental Health - standards ; Middle Aged ; Patient Reported Outcome Measures ; Public Health ; Quality of Life - psychology ; Quality of Life Research ; Reproducibility of Results ; Self report ; Sociology ; Well being</subject><ispartof>Quality of life research, 2020-12, Vol.29 (12), p.3419-3439</ispartof><rights>Springer Nature Switzerland AG 2020</rights><rights>Springer Nature Switzerland AG 2020.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c474t-7e02f4a2851e0b7a5f2e7e1e1611d73279c96faca2b194b4551b1e0fa97d1fd93</citedby><cites>FETCH-LOGICAL-c474t-7e02f4a2851e0b7a5f2e7e1e1611d73279c96faca2b194b4551b1e0fa97d1fd93</cites><orcidid>0000-0003-0439-9429</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s11136-020-02596-1$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s11136-020-02596-1$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>230,314,776,780,881,27901,27902,41464,42533,51294</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/32813263$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Carlozzi, Noelle E.</creatorcontrib><creatorcontrib>Boileau, Nicholas R.</creatorcontrib><creatorcontrib>Roché, Matthew W.</creatorcontrib><creatorcontrib>Ready, Rebecca E.</creatorcontrib><creatorcontrib>Perlmutter, Joel S.</creatorcontrib><creatorcontrib>Chou, Kelvin L.</creatorcontrib><creatorcontrib>Barton, Stacey K.</creatorcontrib><creatorcontrib>McCormack, Michael K.</creatorcontrib><creatorcontrib>Stout, Julie C.</creatorcontrib><creatorcontrib>Cella, David</creatorcontrib><creatorcontrib>Miner, Jennifer A.</creatorcontrib><creatorcontrib>Paulsen, Jane S.</creatorcontrib><title>Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)</title><title>Quality of life research</title><addtitle>Qual Life Res</addtitle><addtitle>Qual Life Res</addtitle><description>Background
The majority of persons with Huntington disease (HD) experience mental health symptoms. Patient-reported outcome (PRO) measures are capable of capturing unobservable behaviors and feelings relating to mental health. The current study aimed to test the reliability and responsiveness to self-reported and clinician-rated change over time of Neuro-QoL and PROMIS mental health PROs over the course of a 24-month period.
Methods
At baseline, 12-months, and 24-months, 362 participants with premanifest or manifest HD completed the Neuro-QoL Depression computer adaptive test (CAT), PROMIS Depression short form (SF), Neuro-QoL Anxiety CAT, PROMIS Anxiety SF, PROMIS Anger CAT and SF, Neuro-QoL Emotional/Behavioral Dyscontrol CAT and SF, Neuro-QoL Positive Affect and Well-Being CAT and SF, and Neuro-QoL Stigma CAT and SF. Participants completed several clinician-administered measures at each time point, as well as several global ratings of change at 12- and 24-months. Reliability (test-retest reliability and measurement error) and responsiveness (using standardized response means and general linear models) were assessed.
Results
Test-retest reliability and measurement error were excellent for all PROs (all ICC ≥ .90 for test-retest reliability and all SEM percentages ≤ 6.82%). In addition, 12- and 24-month responsiveness were generally supported for the Neuro-QoL and PROMIS mental health PROs; findings relative to clinician-rated anchors of change (e.g., SRMs for the group with declines ranged from .38 to .91 for 24-month change and .09 to .45, with the majority above .25 for 12-month change) were generally more robust than those relative to self-reported anchors of change (e.g., SRMs for the group with declines ranged from .02 to .75, with the majority above .39 for 24-month change and .09 to .45, with the majority above .16 for 12-month change).
Conclusions
The Neuro-QoL and PROMIS mental health PROs demonstrated strong psychometric reliability, as well as responsiveness to self-reported and clinician-rated change over time in people with HD.</description><subject>Adult</subject><subject>Female</subject><subject>Humans</subject><subject>Huntington Disease - psychology</subject><subject>Huntingtons disease</subject><subject>Male</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Mental health</subject><subject>Mental Health - standards</subject><subject>Middle Aged</subject><subject>Patient Reported Outcome Measures</subject><subject>Public Health</subject><subject>Quality of Life - psychology</subject><subject>Quality of Life Research</subject><subject>Reproducibility of Results</subject><subject>Self report</subject><subject>Sociology</subject><subject>Well being</subject><issn>0962-9343</issn><issn>1573-2649</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2020</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><recordid>eNp9kU1v1DAQhi0EokvhD3BAlriUQ1p_JHZ8QUIFupW2FAqcLSeZbFwl9mI7i_pT-Ld4u6V8HLBkjax55p0Zvwg9p-SYEiJPIqWUi4Iwkm-lREEfoAWtJC-YKNVDtCBKsELxkh-gJzFeE0JqRdhjdMBZTTkTfIF-XEHceBftFhzEiJPH7WDcGrDfQsDJToCN63CCmIoAu4ADjNY0drTpBvsepwHwx6vLi_PPt-QHmIMvPvkVnsAlM-IBzJiG_DJxDhCxdXgDIeam-LvNieXsknXr5B3ubMwU4KPl21dP0aPejBGe3cVD9PX9uy-ny2J1eXZ--mZVtKUsUyGBsL40rK4okEaaqmcggQIVlHaSM6laJXrTGtZQVTZlVdEmk71RsqN9p_gher3X3czNBF2bhw5m1JtgJxNutDdW_51xdtBrv9VS1IJWIgsc3QkE_23OH6QnG1sYR-PAz1GzklcVJ7UoM_ryH_Taz8Hl9TIleT6K7Si2p9rgYwzQ3w9Did45r_fO6-y8vnVe01z04s817kt-WZ0BvgdiTmWDw-_e_5H9CbBJu68</recordid><startdate>20201201</startdate><enddate>20201201</enddate><creator>Carlozzi, Noelle E.</creator><creator>Boileau, Nicholas R.</creator><creator>Roché, Matthew W.</creator><creator>Ready, Rebecca E.</creator><creator>Perlmutter, Joel S.</creator><creator>Chou, Kelvin L.</creator><creator>Barton, Stacey K.</creator><creator>McCormack, Michael K.</creator><creator>Stout, Julie C.</creator><creator>Cella, David</creator><creator>Miner, Jennifer A.</creator><creator>Paulsen, Jane S.</creator><general>Springer International Publishing</general><general>Springer Nature B.V</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7WY</scope><scope>7WZ</scope><scope>7X7</scope><scope>7XB</scope><scope>87Z</scope><scope>88E</scope><scope>88G</scope><scope>8AO</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8FL</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BEZIV</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FRNLG</scope><scope>FYUFA</scope><scope>F~G</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>K60</scope><scope>K6~</scope><scope>K9.</scope><scope>KB0</scope><scope>L.-</scope><scope>M0C</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>NAPCQ</scope><scope>PQBIZ</scope><scope>PQBZA</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0003-0439-9429</orcidid></search><sort><creationdate>20201201</creationdate><title>Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)</title><author>Carlozzi, Noelle E. ; Boileau, Nicholas R. ; Roché, Matthew W. ; Ready, Rebecca E. ; Perlmutter, Joel S. ; Chou, Kelvin L. ; Barton, Stacey K. ; McCormack, Michael K. ; Stout, Julie C. ; Cella, David ; Miner, Jennifer A. ; Paulsen, Jane S.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c474t-7e02f4a2851e0b7a5f2e7e1e1611d73279c96faca2b194b4551b1e0fa97d1fd93</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2020</creationdate><topic>Adult</topic><topic>Female</topic><topic>Humans</topic><topic>Huntington Disease - psychology</topic><topic>Huntingtons disease</topic><topic>Male</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Mental health</topic><topic>Mental Health - standards</topic><topic>Middle Aged</topic><topic>Patient Reported Outcome Measures</topic><topic>Public Health</topic><topic>Quality of Life - psychology</topic><topic>Quality of Life Research</topic><topic>Reproducibility of Results</topic><topic>Self report</topic><topic>Sociology</topic><topic>Well being</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Carlozzi, Noelle E.</creatorcontrib><creatorcontrib>Boileau, Nicholas R.</creatorcontrib><creatorcontrib>Roché, Matthew W.</creatorcontrib><creatorcontrib>Ready, Rebecca E.</creatorcontrib><creatorcontrib>Perlmutter, Joel S.</creatorcontrib><creatorcontrib>Chou, Kelvin L.</creatorcontrib><creatorcontrib>Barton, Stacey K.</creatorcontrib><creatorcontrib>McCormack, Michael K.</creatorcontrib><creatorcontrib>Stout, Julie C.</creatorcontrib><creatorcontrib>Cella, David</creatorcontrib><creatorcontrib>Miner, Jennifer A.</creatorcontrib><creatorcontrib>Paulsen, Jane S.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>ABI/INFORM Collection</collection><collection>ABI/INFORM Global (PDF only)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>ABI/INFORM Global (Alumni Edition)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>ProQuest Pharma Collection</collection><collection>Public Health Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ABI/INFORM Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>Business Premium Collection</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Business Premium Collection (Alumni)</collection><collection>Health Research Premium Collection</collection><collection>ABI/INFORM Global (Corporate)</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>ProQuest Business Collection (Alumni Edition)</collection><collection>ProQuest Business Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>ABI/INFORM Professional Advanced</collection><collection>ABI/INFORM Global</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Psychology Database</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Business</collection><collection>ProQuest One Business (Alumni)</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Quality of life research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Carlozzi, Noelle E.</au><au>Boileau, Nicholas R.</au><au>Roché, Matthew W.</au><au>Ready, Rebecca E.</au><au>Perlmutter, Joel S.</au><au>Chou, Kelvin L.</au><au>Barton, Stacey K.</au><au>McCormack, Michael K.</au><au>Stout, Julie C.</au><au>Cella, David</au><au>Miner, Jennifer A.</au><au>Paulsen, Jane S.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)</atitle><jtitle>Quality of life research</jtitle><stitle>Qual Life Res</stitle><addtitle>Qual Life Res</addtitle><date>2020-12-01</date><risdate>2020</risdate><volume>29</volume><issue>12</issue><spage>3419</spage><epage>3439</epage><pages>3419-3439</pages><issn>0962-9343</issn><eissn>1573-2649</eissn><abstract>Background
The majority of persons with Huntington disease (HD) experience mental health symptoms. Patient-reported outcome (PRO) measures are capable of capturing unobservable behaviors and feelings relating to mental health. The current study aimed to test the reliability and responsiveness to self-reported and clinician-rated change over time of Neuro-QoL and PROMIS mental health PROs over the course of a 24-month period.
Methods
At baseline, 12-months, and 24-months, 362 participants with premanifest or manifest HD completed the Neuro-QoL Depression computer adaptive test (CAT), PROMIS Depression short form (SF), Neuro-QoL Anxiety CAT, PROMIS Anxiety SF, PROMIS Anger CAT and SF, Neuro-QoL Emotional/Behavioral Dyscontrol CAT and SF, Neuro-QoL Positive Affect and Well-Being CAT and SF, and Neuro-QoL Stigma CAT and SF. Participants completed several clinician-administered measures at each time point, as well as several global ratings of change at 12- and 24-months. Reliability (test-retest reliability and measurement error) and responsiveness (using standardized response means and general linear models) were assessed.
Results
Test-retest reliability and measurement error were excellent for all PROs (all ICC ≥ .90 for test-retest reliability and all SEM percentages ≤ 6.82%). In addition, 12- and 24-month responsiveness were generally supported for the Neuro-QoL and PROMIS mental health PROs; findings relative to clinician-rated anchors of change (e.g., SRMs for the group with declines ranged from .38 to .91 for 24-month change and .09 to .45, with the majority above .25 for 12-month change) were generally more robust than those relative to self-reported anchors of change (e.g., SRMs for the group with declines ranged from .02 to .75, with the majority above .39 for 24-month change and .09 to .45, with the majority above .16 for 12-month change).
Conclusions
The Neuro-QoL and PROMIS mental health PROs demonstrated strong psychometric reliability, as well as responsiveness to self-reported and clinician-rated change over time in people with HD.</abstract><cop>Cham</cop><pub>Springer International Publishing</pub><pmid>32813263</pmid><doi>10.1007/s11136-020-02596-1</doi><tpages>21</tpages><orcidid>https://orcid.org/0000-0003-0439-9429</orcidid><oa>free_for_read</oa></addata></record> |
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source | Jstor Complete Legacy; MEDLINE; Springer Nature - Complete Springer Journals |
subjects | Adult Female Humans Huntington Disease - psychology Huntingtons disease Male Medicine Medicine & Public Health Mental health Mental Health - standards Middle Aged Patient Reported Outcome Measures Public Health Quality of Life - psychology Quality of Life Research Reproducibility of Results Self report Sociology Well being |
title | Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD) |
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