Psychological correlates of adherence to photoprotection in a rare disease: International survey of people with Xeroderma Pigmentosum

Objectives Xeroderma pigmentosum (XP) is an extremely rare genetic disorder (approximately 100 known cases in the United Kingdom), where DNA damage caused by ultraviolet radiation in daylight cannot be repaired. Adherence to photoprotection is essential to prevent skin cancer. We investigated psycho...

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Veröffentlicht in:	British journal of health psychology 2019-09, Vol.24 (3), p.668-686
Hauptverfasser:	Walburn, Jessica, Canfield, Martha, Norton, Sam, Sainsbury, Kirby, Araújo‐Soares, Vera, Foster, Lesley, Berneburg, Mark, Sarasin, Alain, Morrison‐Bowen, Natalie, Sniehotta, Falko F., Sarkany, Robert, Weinman, John
Format:	Artikel
Sprache:	eng
Schlagworte:	Adherence Adult Automaticity Avoidance behavior Caregivers Chronic illnesses Cognitive impairment Cross-Sectional Studies Daylight Demography Deoxyribonucleic acid DNA Efficacy Europe Female Germany Health Behavior High risk Humans illness perceptions Illnesses Incidence Lifestyles Male Original Perceived control Perceptions photoprotection Polls & surveys Psychological distress Radiation Radiation Protection Rare Diseases Risk perception Self Efficacy Skin cancer Skin Neoplasms - prevention & control Social support Surveys and Questionnaires treatment beliefs Ultraviolet radiation Ultraviolet Rays - adverse effects United Kingdom Xeroderma Pigmentosum Xeroderma Pigmentosum - therapy
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Zusammenfassung:	Objectives Xeroderma pigmentosum (XP) is an extremely rare genetic disorder (approximately 100 known cases in the United Kingdom), where DNA damage caused by ultraviolet radiation in daylight cannot be repaired. Adherence to photoprotection is essential to prevent skin cancer. We investigated psychological correlates of photoprotection in the XP population of Western Europe and the United States. Design Cross‐sectional survey of adults with XP and caregivers of patients
ISSN:	1359-107X 2044-8287
DOI:	10.1111/bjhp.12375