Patient and genetic counselor perceptions of in-person versus telephone genetic counseling for hereditary breast/ovarian cancer

Telephone genetic counseling (TC) for high-risk women interested in BRCA1/ 2 testing has been shown to yield positive outcomes comparable to usual care (UC; in-person) genetic counseling. However, little is known about how genetic counselors perceive the delivery of these alternate forms of genetic...

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Veröffentlicht in:Familial cancer 2016-10, Vol.15 (4), p.529-539
Hauptverfasser: Jacobs, Aryana S., Schwartz, Marc D., Valdimarsdottir, Heiddis, Nusbaum, Rachel H., Hooker, Gillian W., DeMarco, Tiffani A., Heinzmann, Jessica E., McKinnon, Wendy, McCormick, Shelley R., Davis, Claire, Forman, Andrea D., Lebensohn, Alexandra Perez, Dalton, Emily, Tully, Diana Moglia, Graves, Kristi D., Similuk, Morgan, Kelly, Scott, Peshkin, Beth N.
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Sprache:eng
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Zusammenfassung:Telephone genetic counseling (TC) for high-risk women interested in BRCA1/ 2 testing has been shown to yield positive outcomes comparable to usual care (UC; in-person) genetic counseling. However, little is known about how genetic counselors perceive the delivery of these alternate forms of genetic counseling. As part of a randomized trial of TC versus UC, genetic counselors completed a 5-item genetic counselor process questionnaire (GCQ) assessing key elements of pre-test sessions (information delivery, emotional support, addressing questions and concerns, tailoring of session, and facilitation of decision-making) with the 479 female participants (TC, N = 236; UC, N = 243). The GCQ scores did not differ for TC vs. UC sessions (t (477) = 0.11, p  = 0.910). However, multivariate analysis showed that participant race/ethnicity significantly predicted genetic counselor perceptions (β = 0.172, p  
ISSN:1389-9600
1573-7292
DOI:10.1007/s10689-016-9900-x