Health following recovery from immune thrombotic thrombocytopenic purpura: the patient’s perspective

•A qualitative study of patients in remission from iTTP documented nearly universal occurrence of cognitive problems, fatigue, and anxiety.•These sequelae of iTTP caused problems with careers, social activities, family responsibilities, and marital relationships. [Display omitted] The impact of residual symptoms following recovery from immune-mediated thrombotic thrombocytopenic purpura (iTTP) on activities of daily living during remission is not routinely discussed or evaluated by hematologists. This study used qualitative methodology to understand 3 issues from the patient’s perspective: the most important symptoms during remission, the impact of these symptoms on their daily activities, and the effectiveness of communication with hematologists. Oklahoma and Ohio patients participated in either focus groups or individual interviews. Eligibility included age ≥18 years, ADAMTS13 deficiency (