Is there a need for more patient participation in Germany? : Analysis and outlook

The involvement of patients in German healthcare lags far behind the required level. Despite the subject status of patients in the healthcare system, possibilities for codecision and active participation are rare. This paper points out structural fields of patient involvement, how a profound quality of participation can be ensured, and how implementation can be designed.Aiming at a higher acceptance of medical care decisions for persons affected, the integration of personal experience and knowledge is reasonable and necessary for the design and development of the healthcare system. Patients must be offered an education imparting information and competences for their participation. Learning modules from different training providers should transmit professional expertise as well as general systematic and methodical skills. Because of the key role the patient occupies administrating their health data, educational services should also be offered in this area. Possibilities for patient participation are offered at all interfaces between healthcare facilities, services, and products. Furthermore, decisions on allocations by the statutory health insurance and higher federal authorities require the participation of patients. However, this involvement requires a preceding democratic legitimation.For efficient patient involvement in the German healthcare system, regulatory challenges must be overcome by all involved parties in the healthcare system. The time for implementation has come.