Cancer genetic susceptibility testing: ethical and policy implications for future research and clinical practice. Cancer Genetic Studies Consortium, National Institutes of Health

Authors examine the ethical and health policy implications in the Cancer Genetic Studies Consortium projects, which attempt to collect data on the clinical benefits and harms of cancer genetic testing. They suggest that more data are needed on the long-term physical and psychosocial effects of testi...

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Veröffentlicht in:	The Journal of law, medicine & ethics medicine & ethics, 1997-12, Vol.25 (4), p.243
Hauptverfasser:	Wilfond, B S, Rothenberg, K H, Thomson, E J, Lerman, C
Format:	Artikel
Sprache:	eng
Schlagworte:	Adult Advisory Committees Child Decision Making Disclosure Empirical Research Ethics, Medical Genetic Counseling Genetic Predisposition to Disease Genetic Privacy Genetic Services Genetic Testing - economics Health Policy Humans Neoplasms - economics Neoplasms - genetics Neoplasms - prevention & control Risk Assessment United States
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Beschreibung
Zusammenfassung:	Authors examine the ethical and health policy implications in the Cancer Genetic Studies Consortium projects, which attempt to collect data on the clinical benefits and harms of cancer genetic testing. They suggest that more data are needed on the long-term physical and psychosocial effects of testing and that further examination is needed of the ethical issues raised by testing.
ISSN:	1073-1105