The Obligation to Share Data … or Not to Share

The Obligation to Share Data … or Not to Share

Creating data-sharing policies and practices that respond to the needs, well-being, and wishes of research participants has never been easy, and is becoming more challenging as new kinds of data become available.

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Bibliographische Detailangaben
Veröffentlicht in:Journal of empirical research on human research ethics 2011-09, Vol.6 (3), p.1-2
1. Verfasser: Sieber, Joan E.
Format: Artikel
Sprache:eng
Schlagworte:
Access to Information
Bioethics
Editorial
Ethics, Research
Human subjects
Humans
Huntington Disease
Information Dissemination
Information sharing
Medical ethics
Medical research
Moral Obligations
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Beschreibung
Zusammenfassung:Creating data-sharing policies and practices that respond to the needs, well-being, and wishes of research participants has never been easy, and is becoming more challenging as new kinds of data become available.
ISSN:1556-2646
1556-2654
DOI:10.1525/jer.2011.6.3.1