Creating Community-Based Participatory Research in a Diverse Community: A Case Study

COMMUNITIES STRUGGLE TO CREATE research guidelines for ethical collaborative research within their locale. In Lawrence, Massachusetts (USA) a collaborative group of community members and academic researchers, known as the Mayor's Health Task Force Research Initiative Working Group, took on the...

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Veröffentlicht in:Journal of empirical research on human research ethics 2008-06, Vol.3 (2), p.5-16
Hauptverfasser: Silka, Linda, Cleghorn, G. Dean, Grullón, Milagro, Tellez, Trinidad
Format: Artikel
Sprache:eng
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Zusammenfassung:COMMUNITIES STRUGGLE TO CREATE research guidelines for ethical collaborative research within their locale. In Lawrence, Massachusetts (USA) a collaborative group of community members and academic researchers, known as the Mayor's Health Task Force Research Initiative Working Group, took on the challenge of creating guidelines for ethical community-based research. This case study of the Task Force's work addresses questions of research ethics in a diverse community where families struggle with few resources and face many health disparities, under the often-intrusive and unhelpful scrutiny of researchers from the many nearby major research universities. Representatives from the city, community organizations, and research universities developed a set of core ethical principles for research partnerships, a list of criteria for agreements between partners, and a model to help guide researchers and community members toward equitable and mutually beneficial research. This model can be generalized to similar other communities.
ISSN:1556-2646
1556-2654
DOI:10.1525/jer.2008.3.2.5