Medical Profiling: Narratives of Privilege, Prejudice, and HIV Stigma

In this article, the author uses selected narrative analysis methods to deconstruct stories presented in separate interviews by a married couple who believe that their HIV-infected adult daughter has been victimized by medical profiling. In their accounts, they construct their belief that their daughter’s gender, race, education, appearance, and socioeconomic status contributed to her not receiving an accurate diagnosis despite repeated medical examinations. Their similar accounts paint a picture of parents frantically seeking a diagnosis as symptoms worsen without explanation. They perceive that their daughter, not fitting the profiling ideas about who is at risk for HIV, missed her chance for early intervention. The author examines in detail how these parents separately tell similar stories, probably representing the explanation they have jointly constructed to explain what they see as a failure of medicine.