Research into glaucoma and ethnicity (ReGAE) 4: trabeculectomy for advanced glaucoma: the surgical journey of African-Caribbean patients

Aim To explore the experiences of African-Caribbean patients with advanced glaucoma. Methods Semi-structured qualitative interviews were used to elicit patients' subjective experiences of becoming a glaucoma patient, receiving treatment, undergoing surgery, and its aftermath. Interview transcripts underwent narrative analysis. Results The surgeon–patient relationship was central to developing effective coping strategies. Participants described their experiences in terms of what they considered were their responsibilities as patients to the surgeon–patient relationship. They also defined the surgeon's responsibilities and obligations. Conclusions The use of patient narratives provides a valuable resource for enhancing communication skills and relationship-centred care in the hospital eye service.