The Research and Family Liaison: Enhancing Informed Consent

Some limited studies describe demonstrated solutions or interventions to meet these challenges, but no consensus exists regarding how best to present research information to families, to educate families about the research process, to ensure that families comprehend information presented to them, or to facilitate the voluntary participation of families throughout a research study. To assure trustworthiness or reliability of data analysis, a primary researcher read the transcripts and clustered the major themes.\n These three activities-direct engagement, education, and consultation-have helped focus the role of the RFL and continue to give it shape as we seek to meet the needs of those involved in research and encourage a truly informed consent process. * RFL Interaction with Other Institutional Members.