Aging with cerebral palsy and other disabilities: personal reflections and recommendations

This article describes the lived experience of one 64‐year‐old woman who is aging with cerebral palsy (CP) and other multiple disabilities. Reflections are offered on coping with secondary conditions and functional decline; fighting the effects of pain and fatigue; and managing well‐meaning, but mis...

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Veröffentlicht in:	Developmental medicine and child neurology 2009-10, Vol.51 (s4), p.12-15
1. Verfasser:	JONES, GWYN C
Format:	Artikel
Sprache:	eng
Schlagworte:	Advisors Aging Anecdotes as Topic Blindness Cerebral palsy Cerebral Palsy - psychology Cerebral Palsy - therapy Deans Disabled Persons - psychology Educational Technology Elementary Education Elementary Schools Families & family life Fatigue (Biology) Female Grade 7 Graduate Study Health Knowledge, Attitudes, Practice High Schools Home Visits Humans Life Change Events Medical Services Middle Aged Multiple Disabilities Musculoskeletal Diseases - psychology Musculoskeletal Diseases - therapy Music Teachers Neighborhood Schools Pain Pain - psychology Pain Management Parents Parents & parenting Physician-Patient Relations Physicians Public Schools Rehabilitation School Counselors School Guidance Secondary Education Secondary schools Vision Vocational Rehabilitation
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Beschreibung
Zusammenfassung:	This article describes the lived experience of one 64‐year‐old woman who is aging with cerebral palsy (CP) and other multiple disabilities. Reflections are offered on coping with secondary conditions and functional decline; fighting the effects of pain and fatigue; and managing well‐meaning, but misdirected, medical advice. Recommendations based on the author’s personal and professional experience with disabilities, including CP, are presented on the aging process and on preventive care for adults living with CP.
ISSN:	0012-1622 1469-8749
DOI:	10.1111/j.1469-8749.2009.03427.x