Children and adolescents’ experiences of active participation in radiological examinations -a qualitative study

Children and adolescents have the right to participate in decisions about their health, including during radiological examinations. This study explores their participation experiences in this context. This qualitative field study examines the importance of active participation from a Child-Centered Care perspective. Fostering active participation requires supportive structures that recognize each child as a unique social actor. Data was collected through observations and semi-structured interviews with 10 children and adolescents diagnosed with cystic fibrosis undergoing High Resolution Computed Tomography (CT) scans. Thematic analysis was performed on the transcribed data to identify central themes and patterns. Parental presence and humor during CT scans helped reduce anxiety among participants. Key factors influencing participation included examination duration and pain, with many expressing a desire for greater involvement, especially during longer, more painful procedures. Few children reported experiencing active participation in hospital settings, particularly during CT scans. Younger and more expressive participants tended to have more opportunities for involvement. While most desired active participation during hospital visits and CT scans, they showed less interest in making treatment decisions. The radiographer's affirming and humorous approach is essential, as are considerations of children and adolescents' preferences regarding parental presence, examination duration, and pain management. Participation levels vary, and limited opportunities can undermine their rights. Children and adolescents express a strong desire for active participation in hospital and radiological settings but often feel insecure about making treatment decisions. This study highlights critical issues related to children and adolescents’ participation in radiological examinations, offering valuable insights for healthcare professionals to enhance participation, which is a fundamental right and crucial aspect of their care.