Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study
Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in p...
Gespeichert in:
| Veröffentlicht in: | The Journal of pediatrics 2024-11, Vol.274, p.114216-114216, Article 114216 |
|---|---|
| Hauptverfasser: | , , , , , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 114216 |
|---|---|
| container_issue | |
| container_start_page | 114216 |
| container_title | The Journal of pediatrics |
| container_volume | 274 |
| creator | Mian, Zanab Calistro, Terrence Rapoza, Kimberly Berkowitz, Shari Salzhauer Rubinstein, Tamar B Walters, Heather M. Eberhard, B. Anne Kenney-Riley, Kathleen Hui-Yuen, Joyce S. |
| description | Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in patients with high activity, nephritis, and/or taking corticosteroids or mycophenolate mofetil. |
| doi_str_mv | 10.1016/j.jpeds.2024.114216 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_proquest_miscellaneous_3086061733</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><els_id>S0022347624003196</els_id><sourcerecordid>3086061733</sourcerecordid><originalsourceid>FETCH-LOGICAL-c295t-64c341c97cb02e2c8f038e018d042a704e7d3f7f1419bdb22cdcabdb1c6b66113</originalsourceid><addsrcrecordid>eNp9kU9v1DAQxSMEokvhEyAhH7lkGf-pnSAhtCwtIK1EpcLZcuwJ61U2DrazVQ5892bZUsGF04w0b948za8oXlJYUqDyzW65G9ClJQMmlpQKRuWjYkGhVqWsOH9cLAAYK7lQ8qx4ltIOAGoB8LQ44zUoobhYFL8--mRDdKbP5BqjxSH70JPQknmAJiFZ2ewPPk_kA-ZbxJ5cx3DwDmMipndk5UKHyWKfE7n1eUtuppRx7y3ZjMOYyGWc8hb3Joc0prdkRdZhG2ImN3l00_PiSWu6hC_u63nx_ery2_pzufn66ct6tSktqy9yKYXlgtpa2QYYMlu1wCsEWjkQzCgQqBxvVUsFrRvXMGadNXNDrWykpJSfF-9PvsPY7NEd00bT6SH6vYmTDsbrfye93-of4aAplfxCSZgdXt87xPBzxJT1fn4cdp3pMYxJc6gkSKo4n6X8JLUxpBSxfbhDQR_J6Z3-TU4fyekTuXnr1d8RH3b-oJoF704CnB918Bh1sh57i85HtFm74P974A7Pk65L</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>3086061733</pqid></control><display><type>article</type><title>Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study</title><source>MEDLINE</source><source>Elsevier ScienceDirect Journals Complete</source><creator>Mian, Zanab ; Calistro, Terrence ; Rapoza, Kimberly ; Berkowitz, Shari Salzhauer ; Rubinstein, Tamar B ; Walters, Heather M. ; Eberhard, B. Anne ; Kenney-Riley, Kathleen ; Hui-Yuen, Joyce S.</creator><creatorcontrib>Mian, Zanab ; Calistro, Terrence ; Rapoza, Kimberly ; Berkowitz, Shari Salzhauer ; Rubinstein, Tamar B ; Walters, Heather M. ; Eberhard, B. Anne ; Kenney-Riley, Kathleen ; Hui-Yuen, Joyce S.</creatorcontrib><description>Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in patients with high activity, nephritis, and/or taking corticosteroids or mycophenolate mofetil.</description><identifier>ISSN: 0022-3476</identifier><identifier>ISSN: 1097-6833</identifier><identifier>EISSN: 1097-6833</identifier><identifier>DOI: 10.1016/j.jpeds.2024.114216</identifier><identifier>PMID: 39074734</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Adolescent ; Child ; Cohort Studies ; discordance ; Female ; Humans ; Lupus Erythematosus, Systemic - psychology ; Male ; Mycophenolic Acid - therapeutic use ; outcome measures ; Pediatric rheumatology ; Perception ; Severity of Illness Index ; systemic lupus erythematosus</subject><ispartof>The Journal of pediatrics, 2024-11, Vol.274, p.114216-114216, Article 114216</ispartof><rights>2024 Elsevier Inc.</rights><rights>Copyright © 2024 Elsevier Inc. All rights reserved.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c295t-64c341c97cb02e2c8f038e018d042a704e7d3f7f1419bdb22cdcabdb1c6b66113</cites><orcidid>0000-0002-0545-906X</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.jpeds.2024.114216$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>230,314,780,784,885,3550,27924,27925,45995</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/39074734$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Mian, Zanab</creatorcontrib><creatorcontrib>Calistro, Terrence</creatorcontrib><creatorcontrib>Rapoza, Kimberly</creatorcontrib><creatorcontrib>Berkowitz, Shari Salzhauer</creatorcontrib><creatorcontrib>Rubinstein, Tamar B</creatorcontrib><creatorcontrib>Walters, Heather M.</creatorcontrib><creatorcontrib>Eberhard, B. Anne</creatorcontrib><creatorcontrib>Kenney-Riley, Kathleen</creatorcontrib><creatorcontrib>Hui-Yuen, Joyce S.</creatorcontrib><title>Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study</title><title>The Journal of pediatrics</title><addtitle>J Pediatr</addtitle><description>Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in patients with high activity, nephritis, and/or taking corticosteroids or mycophenolate mofetil.</description><subject>Adolescent</subject><subject>Child</subject><subject>Cohort Studies</subject><subject>discordance</subject><subject>Female</subject><subject>Humans</subject><subject>Lupus Erythematosus, Systemic - psychology</subject><subject>Male</subject><subject>Mycophenolic Acid - therapeutic use</subject><subject>outcome measures</subject><subject>Pediatric rheumatology</subject><subject>Perception</subject><subject>Severity of Illness Index</subject><subject>systemic lupus erythematosus</subject><issn>0022-3476</issn><issn>1097-6833</issn><issn>1097-6833</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kU9v1DAQxSMEokvhEyAhH7lkGf-pnSAhtCwtIK1EpcLZcuwJ61U2DrazVQ5892bZUsGF04w0b948za8oXlJYUqDyzW65G9ClJQMmlpQKRuWjYkGhVqWsOH9cLAAYK7lQ8qx4ltIOAGoB8LQ44zUoobhYFL8--mRDdKbP5BqjxSH70JPQknmAJiFZ2ewPPk_kA-ZbxJ5cx3DwDmMipndk5UKHyWKfE7n1eUtuppRx7y3ZjMOYyGWc8hb3Joc0prdkRdZhG2ImN3l00_PiSWu6hC_u63nx_ery2_pzufn66ct6tSktqy9yKYXlgtpa2QYYMlu1wCsEWjkQzCgQqBxvVUsFrRvXMGadNXNDrWykpJSfF-9PvsPY7NEd00bT6SH6vYmTDsbrfye93-of4aAplfxCSZgdXt87xPBzxJT1fn4cdp3pMYxJc6gkSKo4n6X8JLUxpBSxfbhDQR_J6Z3-TU4fyekTuXnr1d8RH3b-oJoF704CnB918Bh1sh57i85HtFm74P974A7Pk65L</recordid><startdate>20241101</startdate><enddate>20241101</enddate><creator>Mian, Zanab</creator><creator>Calistro, Terrence</creator><creator>Rapoza, Kimberly</creator><creator>Berkowitz, Shari Salzhauer</creator><creator>Rubinstein, Tamar B</creator><creator>Walters, Heather M.</creator><creator>Eberhard, B. Anne</creator><creator>Kenney-Riley, Kathleen</creator><creator>Hui-Yuen, Joyce S.</creator><general>Elsevier Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-0545-906X</orcidid></search><sort><creationdate>20241101</creationdate><title>Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study</title><author>Mian, Zanab ; Calistro, Terrence ; Rapoza, Kimberly ; Berkowitz, Shari Salzhauer ; Rubinstein, Tamar B ; Walters, Heather M. ; Eberhard, B. Anne ; Kenney-Riley, Kathleen ; Hui-Yuen, Joyce S.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c295t-64c341c97cb02e2c8f038e018d042a704e7d3f7f1419bdb22cdcabdb1c6b66113</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2024</creationdate><topic>Adolescent</topic><topic>Child</topic><topic>Cohort Studies</topic><topic>discordance</topic><topic>Female</topic><topic>Humans</topic><topic>Lupus Erythematosus, Systemic - psychology</topic><topic>Male</topic><topic>Mycophenolic Acid - therapeutic use</topic><topic>outcome measures</topic><topic>Pediatric rheumatology</topic><topic>Perception</topic><topic>Severity of Illness Index</topic><topic>systemic lupus erythematosus</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Mian, Zanab</creatorcontrib><creatorcontrib>Calistro, Terrence</creatorcontrib><creatorcontrib>Rapoza, Kimberly</creatorcontrib><creatorcontrib>Berkowitz, Shari Salzhauer</creatorcontrib><creatorcontrib>Rubinstein, Tamar B</creatorcontrib><creatorcontrib>Walters, Heather M.</creatorcontrib><creatorcontrib>Eberhard, B. Anne</creatorcontrib><creatorcontrib>Kenney-Riley, Kathleen</creatorcontrib><creatorcontrib>Hui-Yuen, Joyce S.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>The Journal of pediatrics</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Mian, Zanab</au><au>Calistro, Terrence</au><au>Rapoza, Kimberly</au><au>Berkowitz, Shari Salzhauer</au><au>Rubinstein, Tamar B</au><au>Walters, Heather M.</au><au>Eberhard, B. Anne</au><au>Kenney-Riley, Kathleen</au><au>Hui-Yuen, Joyce S.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study</atitle><jtitle>The Journal of pediatrics</jtitle><addtitle>J Pediatr</addtitle><date>2024-11-01</date><risdate>2024</risdate><volume>274</volume><spage>114216</spage><epage>114216</epage><pages>114216-114216</pages><artnum>114216</artnum><issn>0022-3476</issn><issn>1097-6833</issn><eissn>1097-6833</eissn><abstract>Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in patients with high activity, nephritis, and/or taking corticosteroids or mycophenolate mofetil.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>39074734</pmid><doi>10.1016/j.jpeds.2024.114216</doi><tpages>1</tpages><orcidid>https://orcid.org/0000-0002-0545-906X</orcidid></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0022-3476 |
| ispartof | The Journal of pediatrics, 2024-11, Vol.274, p.114216-114216, Article 114216 |
| issn | 0022-3476 1097-6833 1097-6833 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_3086061733 |
| source | MEDLINE; Elsevier ScienceDirect Journals Complete |
| subjects | Adolescent Child Cohort Studies discordance Female Humans Lupus Erythematosus, Systemic - psychology Male Mycophenolic Acid - therapeutic use outcome measures Pediatric rheumatology Perception Severity of Illness Index systemic lupus erythematosus |
| title | Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-07T18%3A09%3A54IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_pubme&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Discordant%20Perception%20of%20Disease%20Activity%20Between%20Providers%20and%20Adolescents%20with%20Systemic%20Lupus%20Erythematosus:%20A%20Cohort%20Study&rft.jtitle=The%20Journal%20of%20pediatrics&rft.au=Mian,%20Zanab&rft.date=2024-11-01&rft.volume=274&rft.spage=114216&rft.epage=114216&rft.pages=114216-114216&rft.artnum=114216&rft.issn=0022-3476&rft.eissn=1097-6833&rft_id=info:doi/10.1016/j.jpeds.2024.114216&rft_dat=%3Cproquest_pubme%3E3086061733%3C/proquest_pubme%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=3086061733&rft_id=info:pmid/39074734&rft_els_id=S0022347624003196&rfr_iscdi=true |