Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study

Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in p...

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Veröffentlicht in:	The Journal of pediatrics 2024-11, Vol.274, p.114216-114216, Article 114216
Hauptverfasser:	Mian, Zanab, Calistro, Terrence, Rapoza, Kimberly, Berkowitz, Shari Salzhauer, Rubinstein, Tamar B, Walters, Heather M., Eberhard, B. Anne, Kenney-Riley, Kathleen, Hui-Yuen, Joyce S.
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Child Cohort Studies discordance Female Humans Lupus Erythematosus, Systemic - psychology Male Mycophenolic Acid - therapeutic use outcome measures Pediatric rheumatology Perception Severity of Illness Index systemic lupus erythematosus
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Zusammenfassung:	Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in patients with high activity, nephritis, and/or taking corticosteroids or mycophenolate mofetil.
ISSN:	0022-3476 1097-6833 1097-6833
DOI:	10.1016/j.jpeds.2024.114216