Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa

The COSEB initiative aims for standardized and uniform measurement by developing core outcome sets for epidermolysis bullosa. This report describes the COSEB workshop organized in December 2023, which led to a broad stakeholder consensus-based roadmap. Moreover, it highlights novel features of COSEB...

Ausführliche Beschreibung

Gespeichert in:

Bibliographische Detailangaben
Veröffentlicht in:	British journal of dermatology (1951) 2024-08, Vol.191 (3), p.463-465
Hauptverfasser:	Korte, Eva W H, Pasmooij, Anna M G, Bolling, Maria C, Hickey, Sinéad, Hussain, Sagair, Kiritsi, Dimitra, Kottner, Jan, Prinsen, Cecilia A C, Sauvestre, Angélique, Sendin, Gaston, Spuls, Phyllis I, Tarrats, Núria, Wally, Verena, Welponer, Tobias, Laimer, Martin, van den Akker, Peter C
Format:	Artikel
Sprache:	eng
Online-Zugang:	Volltext
Tags:	Tag hinzufügen Keine Tags, Fügen Sie den ersten Tag hinzu!

Beschreibung
Zusammenfassung:	The COSEB initiative aims for standardized and uniform measurement by developing core outcome sets for epidermolysis bullosa. This report describes the COSEB workshop organized in December 2023, which led to a broad stakeholder consensus-based roadmap. Moreover, it highlights novel features of COSEB, including the pro-active engagement of stakeholders from the very beginning and the appointment of a multi-stakeholder advisory panel.
ISSN:	0007-0963 1365-2133 1365-2133
DOI:	10.1093/bjd/ljae200