A clinical consensus guideline for nutrition in infants with congenital diaphragmatic hernia from birth through discharge

Objective To develop a consensus guideline to meet nutritional challenges faced by infants with congenital diaphragmatic hernia (CDH). Study design The CDH Focus Group utilized a modified Delphi method to develop these clinical consensus guidelines (CCG). Topic leaders drafted recommendations after literature review and group discussion. Each recommendation was sent to focus group members via a REDCap survey tool, and members scored on a Likert scale of 0–100. A score of > 85 with no more than 25% outliers was designated a priori as demonstrating consensus among the group. Results In the first survey 24/25 recommendations received a median score > 90 and after discussion and second round of surveys all 25 recommendations received a median score of 100. Conclusions We present a consensus evidence-based framework for managing parenteral and enteral nutrition, somatic growth, gastroesophageal reflux disease, chylothorax, and long-term follow-up of infants with CDH.