Occupational therapy in the management of haemophilia patients: A scoping review

Background Haemophilia is a haematological disease, although most haemorrhages occur in the locomotor system. Patients are physically disabled from an early age and have a poorer perception of quality of life. In the day‐to‐day lives of patients and their families, psychosocial well‐being, the disea...

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Veröffentlicht in:Haemophilia : the official journal of the World Federation of Hemophilia 2024-01, Vol.30 (1), p.51-58
Hauptverfasser: Seoane‐Martín, Marta Elisa, Cuesta‐Barriuso, Rubén, Rodríguez‐Martínez, María Carmen
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Sprache:eng
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Zusammenfassung:Background Haemophilia is a haematological disease, although most haemorrhages occur in the locomotor system. Patients are physically disabled from an early age and have a poorer perception of quality of life. In the day‐to‐day lives of patients and their families, psychosocial well‐being, the disease's physical, personal, and social impact, as well as work‐related problems are the most complicated aspects of the disease that need to be addressed. Objective To identify the role of occupational therapy in managing patients with haemophilia and to analyse the therapeutic potential of occupational therapy in treating these patients. Methods A scoping review was conducted to identify the role of occupational therapy in managing patients with haemophilia and to analyse the therapeutic potential of occupational therapy in treating these patients. The review was registered in the international registry PROSPERO (Id: CRD42022319637). The databases consulted were SCOPUS, PubMed, PsycINFO, Web of Science and Science Direct, including all studies published until 14 August 2023. Results No single study was found that specifically developed an occupational therapy intervention for patients with haemophilia. Measurement instruments have been identified, specific for patients with haemophilia and generic, that can be useful for the functional evaluation of these patients in the occupational therapy approach. Different studies showed the importance of multidisciplinary treatment, including occupational therapy. Conclusions The use of occupational therapy could be effective in improving autonomy and quality of life in haemophilia patients. Therefore, it is of paramount importance to conduct research studies within the field of occupational therapy.
ISSN:1351-8216
1365-2516
DOI:10.1111/hae.14913