Transition from child to adult services for young people with cerebral palsy in Ireland: Influencing factors at multiple ecological levels

Aim To explore the factors that influence the process of transitioning from child to adult services in Ireland among young people with cerebral palsy, their parents, and service providers. Method This study followed a qualitative descriptive approach. Semi‐structured interviews were conducted with 5...

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Veröffentlicht in:Developmental medicine and child neurology 2024-05, Vol.66 (5), p.623-634
Hauptverfasser: Fortune, Jennifer, Ryan, Jennifer M., Walsh, Aisling, Walsh, Michael, Kerr, Claire, Kroll, Thilo, Lavelle, Grace, Owens, Mary, Hensey, Owen, Norris, Meriel
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Sprache:eng
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Zusammenfassung:Aim To explore the factors that influence the process of transitioning from child to adult services in Ireland among young people with cerebral palsy, their parents, and service providers. Method This study followed a qualitative descriptive approach. Semi‐structured interviews were conducted with 54 participants, including young people with cerebral palsy aged 16 to 22 years (n = 13), their parents (n = 14), and service providers (n = 27). Data were analysed using the Framework Method. Findings were categorized using an ecological model across four levels: individual, microsystem, mesosystem, and exosystem. Results Limited awareness, preparation, and access to information hindered successful transition. Microsystem factors such as family knowledge, readiness, resilience, and health professional expertise influenced transition experience. Mesosystem factors encompassed provider–family interaction, interprofessional partnerships, and interagency collaboration between child and adult services. Exosystem factors included inadequate availability and distribution of adult services, limited referral options, coordination challenges, absence of transition policies, staffing issues, and funding allocation challenges. Interpretation Transition is influenced by diverse factors at multiple ecological levels, including interactions within families, between health professionals, and larger systemic factors. Given the complexity of transition, a comprehensive multi‐level response is required, taking into account the interactions among individuals, services, and systems. This original article is commented on by Fox on pages 555–556 of this issue.
ISSN:0012-1622
1469-8749
DOI:10.1111/dmcn.15778