Genomic Data as a National Strategic Resource: Implications for the Genomic Commons and International Data Sharing for Biomedical Research and Innovation

Genomic Data as a National Strategic Resource: Implications for the Genomic Commons and International Data Sharing for Biomedical Research and Innovation

This article provides a critical review of new policies in China, the United States, and the European Union that characterize genomic data as a national strategic resource. Specifically, we review policies that regulate human genomic data for economic, national security, or other strategic purposes...

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Veröffentlicht in:The Journal of law, medicine & ethics medicine & ethics, 2023-01, Vol.51 (2), p.301-313
Hauptverfasser: McKibbin, Kyle, Shabani, Mahsa
Format: Artikel
Sprache:eng
Schlagworte:
Access to information
Biomedical research
Cloud computing
Collaboration
Competitive advantage
Data
Ethics
Genomes
Genomics
Human rights
Information sharing
Infrastructure
Interoperability
Learning commons
Medical research
National security
Personal health
Privacy
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Zusammenfassung:This article provides a critical review of new policies in China, the United States, and the European Union that characterize genomic data as a national strategic resource. Specifically, we review policies that regulate human genomic data for economic, national security, or other strategic purposes rather than ethical or individual rights purposes.
ISSN:1073-1105
1748-720X
DOI:10.1017/jme.2023.77