Loss of Personal Autonomy and Dignity-Related Distress in End-Of-Life Cancer Patients

The objective of this cross-sectional study is to investigate Dignity-Related Loss of Personal Autonomy (DR-LPA) intended as loss of relational independence causing dignity-related distress. Moreover, it analyzes its possible relationships with demoralization, spirituality, quality of life, hope, an...

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Veröffentlicht in:American journal of hospice & palliative medicine 2024-02, Vol.41 (2), p.179-186
Hauptverfasser: Bovero, Andrea, Botto, Rossana, Mellano, Elena, Gottardo, Francesco, Berchialla, Paola, Carletto, Sara, Geminiani, Giuliano C
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Sprache:eng
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Zusammenfassung:The objective of this cross-sectional study is to investigate Dignity-Related Loss of Personal Autonomy (DR-LPA) intended as loss of relational independence causing dignity-related distress. Moreover, it analyzes its possible relationships with demoralization, spirituality, quality of life, hope, and coping styles in a sample composed of 207 end-of-life cancer patients. These variables have been assessed through the following rating scales: Patient Dignity Inventory - Italian version, Demoralization Scale - Italian version, Functional Assessment of Cancer Therapy Scale – General Measure, Functional Assessment of Chronic Illness Therapy – Spiritual Well-Being, Brief Coping Orientation to Problem Experienced, and Herth Hope Index. The results have shown that most of the DR-LPA items were considered a problem by most patients. Functional, social, emotional, and spiritual wellbeing, disheartenment, age, and sex emerged as significant predictors of DR-LPA. In conclusion, this study showed that DR-LPA can be a relevant concern for patients at the end-of-life and for this reason it becomes necessary for psychosocial provides to consider it to deliver better dignity conserving care.
ISSN:1049-9091
1938-2715
DOI:10.1177/10499091231166373