Psychosocial Outcomes in Children with Cleft Lip and/or Palate: Associations of Demographic, Cleft Morphologic, and Treatment-Related Variables
Objective To determine associations of demographic, morphologic, and treatment protocol parameters with quality of life (QoL), appearance/speech satisfaction, and psychological adjustment. Design Observational study utilizing retrospective report of protocol variables and current outcome variables....
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| Veröffentlicht in: | The Cleft palate-craniofacial journal 2024-11, Vol.61 (11), p.1784-1802 |
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| container_title | The Cleft palate-craniofacial journal |
| container_volume | 61 |
| creator | Crerand, Canice E. Conrad, Amy L. Bellucci, Claudia Crilly Albert, Meredith Heppner, Celia E. Sheikh, Farah Woodard, Suzanne Udaipuria, Shivika Kapp-Simon, Kathleen A. |
| description | Objective
To determine associations of demographic, morphologic, and treatment protocol parameters with quality of life (QoL), appearance/speech satisfaction, and psychological adjustment.
Design
Observational study utilizing retrospective report of protocol variables and current outcome variables.
Setting
Six North American cleft treatment clinics.
Participants
Children, ages 8.0–10.99 years, with Cleft Lip ± Alveolus, Cleft Palate, Cleft Lip and Palate, and parents (N = 284).
Outcome Measures
Pediatric QoL Inventory (PedsQL): Parent, Child, Family Impact Module (FIM); Patient Reported Outcome Measurement Information System (PROMIS); Child Behavior Checklist (CBCL); CLEFT-Q.
Results
Outcome scores were average with few differences by cleft type. Multiple regression analyses yielded significant associations (Ps |
| doi_str_mv | 10.1177/10556656231181581 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_2829431285</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sage_id>10.1177_10556656231181581</sage_id><sourcerecordid>2829431285</sourcerecordid><originalsourceid>FETCH-LOGICAL-c368t-66edb1a73d688fa4206309752ac35e6a13815bcb4434669c5fd1e91dcb2fdbd83</originalsourceid><addsrcrecordid>eNp1kc1u1DAUhS0EoqXwAGyQJTYsSOsbx07Crhp-WmlQK1TYRo59M3GVxMF2hPoUvDIOMy0SiJUt-zvn2ucQ8hLYKUBZngETQkohcw5QgajgETkGUYgMhKwfp326z1bgiDwL4ZaxXEBePSVHvOSCAZPH5Od1uNO9C05bNdCrJWo3YqB2opveDsbjRH_Y2NPNgF2kWztTNZkz5-m1GlTEd_Q8_NZG66ZAXUff4-h2Xs291W8Pqs_Oz70b3G49SnJ641HFEaeYfcHVxdBvylvVDhiekyedGgK-OKwn5OvHDzebi2x79elyc77NNJdVTJ9C04IquZFV1akiZ5KzuhS50lygVMBTHq1ui4IXUtZadAawBqPbvDOtqfgJebP3nb37vmCIzWiDxmFQE7olNHmV1wVPaYmEvv4LvXWLn9LrmpR7nXPGYTWEPaW9C8Fj18zejsrfNcCata3mn7aS5tXBeWlHNA-K-3oScLoHgtrhn7H_d_wFeQ2c5Q</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>3119230318</pqid></control><display><type>article</type><title>Psychosocial Outcomes in Children with Cleft Lip and/or Palate: Associations of Demographic, Cleft Morphologic, and Treatment-Related Variables</title><source>MEDLINE</source><source>SAGE Complete A-Z List</source><creator>Crerand, Canice E. ; Conrad, Amy L. ; Bellucci, Claudia Crilly ; Albert, Meredith ; Heppner, Celia E. ; Sheikh, Farah ; Woodard, Suzanne ; Udaipuria, Shivika ; Kapp-Simon, Kathleen A.</creator><creatorcontrib>Crerand, Canice E. ; Conrad, Amy L. ; Bellucci, Claudia Crilly ; Albert, Meredith ; Heppner, Celia E. ; Sheikh, Farah ; Woodard, Suzanne ; Udaipuria, Shivika ; Kapp-Simon, Kathleen A.</creatorcontrib><description>Objective
To determine associations of demographic, morphologic, and treatment protocol parameters with quality of life (QoL), appearance/speech satisfaction, and psychological adjustment.
Design
Observational study utilizing retrospective report of protocol variables and current outcome variables.
Setting
Six North American cleft treatment clinics.
Participants
Children, ages 8.0–10.99 years, with Cleft Lip ± Alveolus, Cleft Palate, Cleft Lip and Palate, and parents (N = 284).
Outcome Measures
Pediatric QoL Inventory (PedsQL): Parent, Child, Family Impact Module (FIM); Patient Reported Outcome Measurement Information System (PROMIS); Child Behavior Checklist (CBCL); CLEFT-Q.
Results
Outcome scores were average with few differences by cleft type. Multiple regression analyses yielded significant associations (Ps < .05) between socioeconomic status, race, and age at assessment and parent- and self-reported measures. Females had higher PROMIS Depression (β=.20) but lower CBCL Affective (β = −.16) and PROMIS Stigma scores (β= −.24). Incomplete cleft lip was associated with lower PROMIS Depression, and more positive ratings of CLEFT-Q: Nose, Nostril, Lip Scar; CBCL Competence scores, (βs = −.17 to .17). Younger Age at Lip Closure was associated with higher CBCL School Competence (β= −.18). Younger Age at Palate Closure was associated with higher Child PedsQL Total, Physical, Psychosocial QoL, and better CLEFT-Q Speech Function (βs = −.18 to −.15). Furlow Palatoplasty was associated with more CBCL Externalizing Problems (β = .17) higher CBCL Activities (β = .16). For all diagnoses, fewer Total Cleft-Related Surgeries was associated with lower PROMIS Stigma and higher CBCL Total Competence and Activities (βs = −.16 to .15).
Conclusions
Demographic characteristics, lip morphology, and treatment variables are related to later psychological functioning.</description><identifier>ISSN: 1055-6656</identifier><identifier>ISSN: 1545-1569</identifier><identifier>EISSN: 1545-1569</identifier><identifier>DOI: 10.1177/10556656231181581</identifier><identifier>PMID: 37350106</identifier><language>eng</language><publisher>Los Angeles, CA: SAGE Publications</publisher><subject>Birth defects ; Child ; Cleft Lip - psychology ; Cleft Lip - surgery ; Cleft Palate - psychology ; Cleft Palate - surgery ; Female ; Humans ; Male ; North America ; Psychological aspects ; Quality of Life ; Retrospective Studies ; Surgical outcomes ; Surgical techniques ; Surveys and Questionnaires</subject><ispartof>The Cleft palate-craniofacial journal, 2024-11, Vol.61 (11), p.1784-1802</ispartof><rights>2023, American Cleft Palate Craniofacial Association</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c368t-66edb1a73d688fa4206309752ac35e6a13815bcb4434669c5fd1e91dcb2fdbd83</citedby><cites>FETCH-LOGICAL-c368t-66edb1a73d688fa4206309752ac35e6a13815bcb4434669c5fd1e91dcb2fdbd83</cites><orcidid>0000-0003-0040-6396 ; 0000-0001-7938-143X ; 0000-0002-0204-9583 ; 0000-0001-5360-7517</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/10556656231181581$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/10556656231181581$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>314,776,780,21799,27903,27904,43600,43601</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/37350106$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Crerand, Canice E.</creatorcontrib><creatorcontrib>Conrad, Amy L.</creatorcontrib><creatorcontrib>Bellucci, Claudia Crilly</creatorcontrib><creatorcontrib>Albert, Meredith</creatorcontrib><creatorcontrib>Heppner, Celia E.</creatorcontrib><creatorcontrib>Sheikh, Farah</creatorcontrib><creatorcontrib>Woodard, Suzanne</creatorcontrib><creatorcontrib>Udaipuria, Shivika</creatorcontrib><creatorcontrib>Kapp-Simon, Kathleen A.</creatorcontrib><title>Psychosocial Outcomes in Children with Cleft Lip and/or Palate: Associations of Demographic, Cleft Morphologic, and Treatment-Related Variables</title><title>The Cleft palate-craniofacial journal</title><addtitle>Cleft Palate Craniofac J</addtitle><description>Objective
To determine associations of demographic, morphologic, and treatment protocol parameters with quality of life (QoL), appearance/speech satisfaction, and psychological adjustment.
Design
Observational study utilizing retrospective report of protocol variables and current outcome variables.
Setting
Six North American cleft treatment clinics.
Participants
Children, ages 8.0–10.99 years, with Cleft Lip ± Alveolus, Cleft Palate, Cleft Lip and Palate, and parents (N = 284).
Outcome Measures
Pediatric QoL Inventory (PedsQL): Parent, Child, Family Impact Module (FIM); Patient Reported Outcome Measurement Information System (PROMIS); Child Behavior Checklist (CBCL); CLEFT-Q.
Results
Outcome scores were average with few differences by cleft type. Multiple regression analyses yielded significant associations (Ps < .05) between socioeconomic status, race, and age at assessment and parent- and self-reported measures. Females had higher PROMIS Depression (β=.20) but lower CBCL Affective (β = −.16) and PROMIS Stigma scores (β= −.24). Incomplete cleft lip was associated with lower PROMIS Depression, and more positive ratings of CLEFT-Q: Nose, Nostril, Lip Scar; CBCL Competence scores, (βs = −.17 to .17). Younger Age at Lip Closure was associated with higher CBCL School Competence (β= −.18). Younger Age at Palate Closure was associated with higher Child PedsQL Total, Physical, Psychosocial QoL, and better CLEFT-Q Speech Function (βs = −.18 to −.15). Furlow Palatoplasty was associated with more CBCL Externalizing Problems (β = .17) higher CBCL Activities (β = .16). For all diagnoses, fewer Total Cleft-Related Surgeries was associated with lower PROMIS Stigma and higher CBCL Total Competence and Activities (βs = −.16 to .15).
Conclusions
Demographic characteristics, lip morphology, and treatment variables are related to later psychological functioning.</description><subject>Birth defects</subject><subject>Child</subject><subject>Cleft Lip - psychology</subject><subject>Cleft Lip - surgery</subject><subject>Cleft Palate - psychology</subject><subject>Cleft Palate - surgery</subject><subject>Female</subject><subject>Humans</subject><subject>Male</subject><subject>North America</subject><subject>Psychological aspects</subject><subject>Quality of Life</subject><subject>Retrospective Studies</subject><subject>Surgical outcomes</subject><subject>Surgical techniques</subject><subject>Surveys and Questionnaires</subject><issn>1055-6656</issn><issn>1545-1569</issn><issn>1545-1569</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kc1u1DAUhS0EoqXwAGyQJTYsSOsbx07Crhp-WmlQK1TYRo59M3GVxMF2hPoUvDIOMy0SiJUt-zvn2ucQ8hLYKUBZngETQkohcw5QgajgETkGUYgMhKwfp326z1bgiDwL4ZaxXEBePSVHvOSCAZPH5Od1uNO9C05bNdCrJWo3YqB2opveDsbjRH_Y2NPNgF2kWztTNZkz5-m1GlTEd_Q8_NZG66ZAXUff4-h2Xs291W8Pqs_Oz70b3G49SnJ641HFEaeYfcHVxdBvylvVDhiekyedGgK-OKwn5OvHDzebi2x79elyc77NNJdVTJ9C04IquZFV1akiZ5KzuhS50lygVMBTHq1ui4IXUtZadAawBqPbvDOtqfgJebP3nb37vmCIzWiDxmFQE7olNHmV1wVPaYmEvv4LvXWLn9LrmpR7nXPGYTWEPaW9C8Fj18zejsrfNcCata3mn7aS5tXBeWlHNA-K-3oScLoHgtrhn7H_d_wFeQ2c5Q</recordid><startdate>20241101</startdate><enddate>20241101</enddate><creator>Crerand, Canice E.</creator><creator>Conrad, Amy L.</creator><creator>Bellucci, Claudia Crilly</creator><creator>Albert, Meredith</creator><creator>Heppner, Celia E.</creator><creator>Sheikh, Farah</creator><creator>Woodard, Suzanne</creator><creator>Udaipuria, Shivika</creator><creator>Kapp-Simon, Kathleen A.</creator><general>SAGE Publications</general><general>SAGE PUBLICATIONS, INC</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-0040-6396</orcidid><orcidid>https://orcid.org/0000-0001-7938-143X</orcidid><orcidid>https://orcid.org/0000-0002-0204-9583</orcidid><orcidid>https://orcid.org/0000-0001-5360-7517</orcidid></search><sort><creationdate>20241101</creationdate><title>Psychosocial Outcomes in Children with Cleft Lip and/or Palate: Associations of Demographic, Cleft Morphologic, and Treatment-Related Variables</title><author>Crerand, Canice E. ; Conrad, Amy L. ; Bellucci, Claudia Crilly ; Albert, Meredith ; Heppner, Celia E. ; Sheikh, Farah ; Woodard, Suzanne ; Udaipuria, Shivika ; Kapp-Simon, Kathleen A.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c368t-66edb1a73d688fa4206309752ac35e6a13815bcb4434669c5fd1e91dcb2fdbd83</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2024</creationdate><topic>Birth defects</topic><topic>Child</topic><topic>Cleft Lip - psychology</topic><topic>Cleft Lip - surgery</topic><topic>Cleft Palate - psychology</topic><topic>Cleft Palate - surgery</topic><topic>Female</topic><topic>Humans</topic><topic>Male</topic><topic>North America</topic><topic>Psychological aspects</topic><topic>Quality of Life</topic><topic>Retrospective Studies</topic><topic>Surgical outcomes</topic><topic>Surgical techniques</topic><topic>Surveys and Questionnaires</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Crerand, Canice E.</creatorcontrib><creatorcontrib>Conrad, Amy L.</creatorcontrib><creatorcontrib>Bellucci, Claudia Crilly</creatorcontrib><creatorcontrib>Albert, Meredith</creatorcontrib><creatorcontrib>Heppner, Celia E.</creatorcontrib><creatorcontrib>Sheikh, Farah</creatorcontrib><creatorcontrib>Woodard, Suzanne</creatorcontrib><creatorcontrib>Udaipuria, Shivika</creatorcontrib><creatorcontrib>Kapp-Simon, Kathleen A.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>The Cleft palate-craniofacial journal</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Crerand, Canice E.</au><au>Conrad, Amy L.</au><au>Bellucci, Claudia Crilly</au><au>Albert, Meredith</au><au>Heppner, Celia E.</au><au>Sheikh, Farah</au><au>Woodard, Suzanne</au><au>Udaipuria, Shivika</au><au>Kapp-Simon, Kathleen A.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Psychosocial Outcomes in Children with Cleft Lip and/or Palate: Associations of Demographic, Cleft Morphologic, and Treatment-Related Variables</atitle><jtitle>The Cleft palate-craniofacial journal</jtitle><addtitle>Cleft Palate Craniofac J</addtitle><date>2024-11-01</date><risdate>2024</risdate><volume>61</volume><issue>11</issue><spage>1784</spage><epage>1802</epage><pages>1784-1802</pages><issn>1055-6656</issn><issn>1545-1569</issn><eissn>1545-1569</eissn><abstract>Objective
To determine associations of demographic, morphologic, and treatment protocol parameters with quality of life (QoL), appearance/speech satisfaction, and psychological adjustment.
Design
Observational study utilizing retrospective report of protocol variables and current outcome variables.
Setting
Six North American cleft treatment clinics.
Participants
Children, ages 8.0–10.99 years, with Cleft Lip ± Alveolus, Cleft Palate, Cleft Lip and Palate, and parents (N = 284).
Outcome Measures
Pediatric QoL Inventory (PedsQL): Parent, Child, Family Impact Module (FIM); Patient Reported Outcome Measurement Information System (PROMIS); Child Behavior Checklist (CBCL); CLEFT-Q.
Results
Outcome scores were average with few differences by cleft type. Multiple regression analyses yielded significant associations (Ps < .05) between socioeconomic status, race, and age at assessment and parent- and self-reported measures. Females had higher PROMIS Depression (β=.20) but lower CBCL Affective (β = −.16) and PROMIS Stigma scores (β= −.24). Incomplete cleft lip was associated with lower PROMIS Depression, and more positive ratings of CLEFT-Q: Nose, Nostril, Lip Scar; CBCL Competence scores, (βs = −.17 to .17). Younger Age at Lip Closure was associated with higher CBCL School Competence (β= −.18). Younger Age at Palate Closure was associated with higher Child PedsQL Total, Physical, Psychosocial QoL, and better CLEFT-Q Speech Function (βs = −.18 to −.15). Furlow Palatoplasty was associated with more CBCL Externalizing Problems (β = .17) higher CBCL Activities (β = .16). For all diagnoses, fewer Total Cleft-Related Surgeries was associated with lower PROMIS Stigma and higher CBCL Total Competence and Activities (βs = −.16 to .15).
Conclusions
Demographic characteristics, lip morphology, and treatment variables are related to later psychological functioning.</abstract><cop>Los Angeles, CA</cop><pub>SAGE Publications</pub><pmid>37350106</pmid><doi>10.1177/10556656231181581</doi><tpages>19</tpages><orcidid>https://orcid.org/0000-0003-0040-6396</orcidid><orcidid>https://orcid.org/0000-0001-7938-143X</orcidid><orcidid>https://orcid.org/0000-0002-0204-9583</orcidid><orcidid>https://orcid.org/0000-0001-5360-7517</orcidid></addata></record> |
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| identifier | ISSN: 1055-6656 |
| ispartof | The Cleft palate-craniofacial journal, 2024-11, Vol.61 (11), p.1784-1802 |
| issn | 1055-6656 1545-1569 1545-1569 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_2829431285 |
| source | MEDLINE; SAGE Complete A-Z List |
| subjects | Birth defects Child Cleft Lip - psychology Cleft Lip - surgery Cleft Palate - psychology Cleft Palate - surgery Female Humans Male North America Psychological aspects Quality of Life Retrospective Studies Surgical outcomes Surgical techniques Surveys and Questionnaires |
| title | Psychosocial Outcomes in Children with Cleft Lip and/or Palate: Associations of Demographic, Cleft Morphologic, and Treatment-Related Variables |
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