Views of parents of children with Down syndrome on Alzheimer’s disease vaccination
Individuals with Down syndrome (DS) experience increased risk of Alzheimer’s disease (AD). Recent studies suggest that a vaccine against AD may be forthcoming. Parental buy-in is critical to the success of any intervention in this population, as adults with DS often rely on familial support. This st...
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| Veröffentlicht in: | Journal of intellectual disabilities 2024-09, Vol.28 (3), p.759-772 |
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| container_title | Journal of intellectual disabilities |
| container_volume | 28 |
| creator | Batbold, Sarah Cummings, Gabrielle Riggan, Kirsten A. Michie, Marsha Allyse, Megan |
| description | Individuals with Down syndrome (DS) experience increased risk of Alzheimer’s disease (AD). Recent studies suggest that a vaccine against AD may be forthcoming. Parental buy-in is critical to the success of any intervention in this population, as adults with DS often rely on familial support. This study aims to characterize parents’ perceptions of a hypothetical vaccine to prevent AD in individuals with DS. A mixed-methods, anonymous survey was distributed via social media. Participants were asked about their experiences with DS and reactions to proposed interventions. Open-ended responses were thematically analyzed using NVivo 12. Of 1,093 surveys initiated, 532 were completed. Of the parents sampled (N = 532), a small majority (54.3%), supported the proposed AD vaccine. All expressed the need for extensive pre-enrollment education and minimal risk. For many, limited research and long-term sequelae were concerns. |
| doi_str_mv | 10.1177/17446295231177787 |
| format | Article |
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Recent studies suggest that a vaccine against AD may be forthcoming. Parental buy-in is critical to the success of any intervention in this population, as adults with DS often rely on familial support. This study aims to characterize parents’ perceptions of a hypothetical vaccine to prevent AD in individuals with DS. A mixed-methods, anonymous survey was distributed via social media. Participants were asked about their experiences with DS and reactions to proposed interventions. Open-ended responses were thematically analyzed using NVivo 12. Of 1,093 surveys initiated, 532 were completed. Of the parents sampled (N = 532), a small majority (54.3%), supported the proposed AD vaccine. All expressed the need for extensive pre-enrollment education and minimal risk. 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| fulltext | fulltext |
| identifier | ISSN: 1744-6295 |
| ispartof | Journal of intellectual disabilities, 2024-09, Vol.28 (3), p.759-772 |
| issn | 1744-6295 1744-6309 1744-6309 |
| language | eng |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); Alma/SFX Local Collection; Sage Journals |
| subjects | Down syndrome Immunization Intervention Parents & parenting Polls & surveys Social media |
| title | Views of parents of children with Down syndrome on Alzheimer’s disease vaccination |
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