266th ENMC International Workshop: Remote delivery of clinical care and validation of remote clinical outcome assessments in neuromuscular disorders: A response to COVID-19 and proactive planning for the future. Hoofddorp, The Netherlands, 1–3 April 2022

•Remote outcomes may reduce travel burden and access to quality care and research.•Remote testing strategies were implemented in response to the pandemic.•Validation of remote methodologies are needed prior to broad implementation.•Remote testing and alternative monitoring strategies are currently b...

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Veröffentlicht in:	Neuromuscular disorders : NMD 2023-04, Vol.33 (4), p.339-348
Hauptverfasser:	Alfano, Lindsay N., James, Meredith K., Ramdharry, Gita M., Lowes, Linda P., Coats, Julie, Corderí, José, Costello, Annette, Eagle, Michelle, Elseed, Maha, Gaeta, Alessandra, Gordish-Dressman, Heather, Davies, Elin Haf, Human, Anri, Knudsen, Lone, Leffler, Mindy, Levy, Jennifer, Lilien, Charlotte, Mancini, Maria, Mayhew, Anna, McGrattan, Katlyn, Muni-Lofra, Robert, Peck, Allison, Peck, Nathan, Prada, Valeria, Pylarinou, Hara, Rose, Kristy, Werlauff, Ulla
Format:	Artikel
Sprache:	eng
Schlagworte:	Assessment Care Clinical outcome COVID-19 Data Collection Function Humans Netherlands Neuromuscular Diseases - diagnosis Neuromuscular Diseases - therapy Neuromuscular disorders Outcome Assessment, Health Care Remote Video
Online-Zugang:	Volltext
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Beschreibung
Zusammenfassung:	•Remote outcomes may reduce travel burden and access to quality care and research.•Remote testing strategies were implemented in response to the pandemic.•Validation of remote methodologies are needed prior to broad implementation.•Remote testing and alternative monitoring strategies are currently being investigated.
ISSN:	0960-8966 1873-2364 1873-2364
DOI:	10.1016/j.nmd.2023.02.011