“I Don’t Really Know What Diabetes Is”: A Qualitative Study Exploring the Experiences of Aboriginal and Torres Strait Islander Young People Aged 10 to 25 Years Living With Type 2 Diabetes in Northern and Central Australia

Our aim in this study was to gain an understanding of the experiences of Aboriginal and Torres Strait Islander young people aged 10 to 25 years with type 2 diabetes (T2D) living in Northern and Central Australia. In this qualitative study, we explored participants’ experiences of T2D using a social...

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Veröffentlicht in:Canadian journal of diabetes 2022-10, Vol.46 (7), p.722-729
Hauptverfasser: Weaver, Emma, Freeman, Natasha, Mack, Shiree, Titmuss, Angela, Dowler, James, Corpus, Sumaria, Hyatt, Teresa, Ellis, Elna, Sanderson, Cheryl, Connors, Christine, Moore, Elizabeth, Silver, Bronwyn, Azzopardi, Peter, Maple-Brown, Louise, Kirkham, Renae
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Sprache:eng
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Zusammenfassung:Our aim in this study was to gain an understanding of the experiences of Aboriginal and Torres Strait Islander young people aged 10 to 25 years with type 2 diabetes (T2D) living in Northern and Central Australia. In this qualitative study, we explored participants’ experiences of T2D using a social constructionist epistemology and a phenomenologic methodology. Twenty-seven young people participated in semistructured in-depth interviews from 4 primary health-care sites. Three major constructs emerged. Young people experienced a normalization–shame paradox in response to their diagnosis (partly related to that “everyone has diabetes,” as well as the fear that friends “might judge [me]”), had suboptimal levels of understanding of T2D (“I don’t really know what diabetes is. I just need somebody to explain to me a bit more”) and experienced multiple barriers inhibiting their T2D management. Barriers included complex lives (“I have a rheumatic heart disease […] then they told me that I have diabetes…I have two things”) and the availability of support (“[I] talk to my mum…I talk to my aunty too…I don’t talk to anyone else”). Successful management requires support from health professionals and family and includes strengthening social networks and educational opportunities. Our findings reinforce the need for alternative support systems tailored to the specific needs of young Aboriginal and Torres Strait Islander people with T2D. Enhanced models of care must be codesigned with young people and their communities and include a focus on shifting norms and expectations about youth T2D to reduce diabetes stigma and broaden social support and consider the delivery of health information in youth-friendly environments. L’objectif de notre étude était d’acquérir une compréhension des expériences des jeunes aborigènes et insulaires du détroit de Torrès âgés de 10 à 25 ans et diabétiques de type 2 (DT2) qui vivent dans le nord et le centre de l’Australie. Dans cette étude qualitative, l’épistémologie constructiviste sociale et la méthode phénoménologique nous ont permis d’explorer les expériences des participants concernant le DT2. Vingt-sept jeunes de 4 établissements en soins de santé primaires ont participé à des entretiens semi-structurés en profondeur. Trois construits importants étaient apparus. Les jeunes connaissaient un paradoxe normalisation–honte en réponse à leur diagnostic (qui s’explique en partie par l’affirmation que « tout le monde a le diabète » et par la cr
ISSN:1499-2671
2352-3840
2352-3840
DOI:10.1016/j.jcjd.2022.04.010