Of Registries and Disease Classification: Unmasking the Challenges of Pediatric Pulmonary Hypertension

Abman and Mullen discuss the study from a team at the Great Ormand Street Hospital for Children (GOSH) which provides a unique window into the nature of pediatric pulmonary hypertension (PH) by characterizing the longitudinal outcomes of incident cases from throughout the UK over a very extensive time period. In addition to advancing many important findings from a very comprehensive dataset, this study further offers a timely and wonderful opportunity to recognize the 20th anniversary of this internationally renowned service, as originally established and led by Dr. Glennis Haworth, whose contributions to pediatric PH have been extraordinary. A leader who emphasized the highest standards of academic work in the field, Dr. Haworth was one of the earliest and strongest advocates for improving outcomes of children with severe disease.