Neuroblastoma in Spain: Linking the national clinical database and epidemiological registries – A study by the Joint Action on Rare Cancers

Linkage between clinical databases and population-based cancer registries may serve to evaluate European Reference Networks’ (ERNs) activity, by monitoring the proportion of patients benefiting from these and their impact on survival at a population level. To test this, a study targeting neuroblasto...

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Veröffentlicht in:	Cancer epidemiology 2022-06, Vol.78, p.102145-102145, Article 102145
Hauptverfasser:	Cañete, Adela, Peris-Bonet, Rafael, Capocaccia, Riccardo, Pardo-Romaguera, Elena, Segura, Vanessa, Muñoz-López, Ana, Fernández-Teijeiro, Ana, Galceran-Padros, Jaume, Gatta, Gemma, Almazán, F, Benito, AI, Buedo, MI, Calvo, C, Cañete, A, Cruz, O, Esquembre, C, Fernández, M, Fernández-Teijeiro Álvarez, A, Fuster, JL, García, M, Gil López, C, Gómez, J, Gondra, A, González, M, González, H, Herrero, B, Lassaletta, A, López, R, López-Ibor Aliño, B, Madero, L, Maldonado, S, Mares, FJ, Márquez, C, Mateos, ME, Melwani, K, Mendoza, MC, Moreno, L, Moreno, ML, Muñoz, GM, Ortega, MJ, Panizo, E, Pisa Gatell, S, Portugal, R, Sagaseta, M, Salinas, JA, Sastre, A, Tallón, M, Torrent, M, Uriz, JJ, Varo, A, Vázquez, MA, Vílchez, JS, Villegas, JA, Vivanco, JL, Zamora, M, Alamo, R, Alemán, A, Chico, M, Chirlaque, MD, Galceran, J, Marcos, R, Mateos, A, Quirós, JR, Sanchez-Contador, C, Sabater, C
Format:	Artikel
Sprache:	eng
Schlagworte:	Age groups Cancer Cancer registry Child Childhood cancer Children Clinical registry Clinical trials Completeness Databases, Factual Epidemiology European Reference Network Humans Incidence Joint Action on Rare Cancers Medical diagnosis Neoplasms - epidemiology Neuroblastoma Neuroblastoma - epidemiology Patients Pediatrics Population Record linkage Regions Registries Spain - epidemiology Survival Tumors
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Zusammenfassung:	Linkage between clinical databases and population-based cancer registries may serve to evaluate European Reference Networks’ (ERNs) activity, by monitoring the proportion of patients benefiting from these and their impact on survival at a population level. To test this, a study targeting neuroblastoma (Nb) was conducted in Spain by the European Joint Action on Rare Cancers. Subjects: Nb cases, incident 1999–2017, aged
ISSN:	1877-7821 1877-783X
DOI:	10.1016/j.canep.2022.102145