Progression of self-management learning experiences of young adults following an allogeneic hematopoietic stem cell transplantation: A qualitative study

Hematological diseases are among the most common forms of cancer that can affect young adults. Hematopoietic stem cell transplantation is a common intervention to treat blood-related cancers such as leukemia and lymphoma. Allogeneic stem cell transplants can provoke many acute and chronic symptoms. Young adult cancer survivors are expected to develop expertise to self-manage these symptoms. However, learning self-management can be quite challenging for young adults. This paper aims to describe the symptoms self-management learning experiences of young adults following an allogeneic stem cell transplant. A qualitative descriptive study was conducted to describe self-management learning experiences of young adults (18–39 years old) following an allogeneic stem cell transplant. Semi-structured interviews were conducted (n = 7, mean age 26 years old, mean time since allogeneic stem cell transplant was 14,71 months). Iterative qualitative content analysis was performed. Participants who had undergone an allogeneic stem cell transplant described learning self-management as a progressive process, with expertise having to be developed through experience. Certain factors could positively or negatively affect the learning process and hence the development of this self-management expertise. With time, these young adults developed interoceptive ability and body awareness related to their symptoms, which influenced their self-management. Following an allogeneic stem cell transplant, young adults need to be supported during their survivorship to develop self-management expertise. Nurses must adapt care according to patients’ level of expertise to promote autonomy, development of interoceptive ability, and acquisition of self-management skills. •Experiential learning plays a key role in self-management.•Learning about self-management is progressive and requires time.•Young adults develop a self-awareness of their bodies that enhances self-management.