Sharing Health Data and Biospecimens with Industry — A Principle-Driven, Practical Approach

Sharing Health Data and Biospecimens with Industry — A Principle-Driven, Practical Approach

Regulations give substantial discretion to individual organizations when it comes to sharing deidentified data and specimens with outside entities. Academic medical centers are practically and ethically compelled to establish best practices for such sharing.

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Bibliographische Detailangaben
Veröffentlicht in:The New England journal of medicine 2020-05, Vol.382 (22), p.2072-2075
Hauptverfasser: Spector-Bagdady, Kayte, Hutchinson, Raymond, O’Brien Kaleba, Erin, Kheterpal, Sachin
Format: Artikel
Sprache:eng
Schlagworte:
Committees
COVID-19
Orphans
Pediatrics
Privacy
Product development
R&D
Research & development
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Beschreibung
Zusammenfassung:Regulations give substantial discretion to individual organizations when it comes to sharing deidentified data and specimens with outside entities. Academic medical centers are practically and ethically compelled to establish best practices for such sharing.
ISSN:0028-4793
1533-4406
DOI:10.1056/NEJMp1915298