Parents’ Assessment of an Advanced-Practice Nurse and Care Coordination Assistant Model Medical Care Coordination Program for Children With Medical Complexity

Care for many children with medical complexity (CMC) is fragmented, leading to increased family dissatisfaction and stress. We evaluated the impact of an Advanced-Practice Nurse and Care Coordination Assistant model medical care coordination program (MCCP) for CMC at an urban tertiary pediatric hospital on caregivers’ perceptions of several health care indicators. A retrospective pre-post survey was administered to parents of CMC enrolled in an MCCP for a minimum of 6 months. Questions were grouped into four domains: quality of life, caregiver satisfaction, care coordination, and caregiver self-efficacy. Mean scores of questions in each domain were compared from before program enrollment with those at the time of survey completion, using paired sample t tests. There was an increase in the mean score in all four domains. Parents of CMC experience an Advanced-Practice Nurse and Care Coordination Assistant model MCCP to be effective in improving the navigation of and satisfaction with their child's health care environment.