Therapy access among children with autism spectrum disorder, cerebral palsy, and attention‐deficit–hyperactivity disorder: a population‐based study

Aim This study examined cross‐sectional population‐based rates in reported need and unmet need for occupational, physical, and speech therapy services in children with autism spectrum disorder (ASD) compared with children with attention‐deficit–hyperactivity disorder (ADHD) and cerebral palsy (CP). Method The 2005–2006 and 2009–2010 (USA) National Survey of Children with Special Health Care data sets were used to compare therapy need and unmet need among children younger than 18 years with ASD (n=5178), ADHD (n=20 566), and CP (n=1183). Bivariate approaches and multivariate logistic regression using imputed data were used to identify associations between child and family characteristics, and access to therapy services. Results After adjusting for other variables, children with ASD had a significantly greater likelihood of having an unmet therapy need compared with children with ADHD (odds ratio [OR] 1.66, 95% confidence interval [CI] 1.36–2.03), but a similar unmet need as children with CP (OR 1.30, 95% CI 0.97–1.74). Factors associated with unmet need included survey year, younger child age, no health insurance, and increased functional and behavioral difficulties. Interpretation Children in our sample had greater unmet therapy needs in 2009 than in 2005. Caregiver‐reported reasons for unmet need included cost and school resources. Research examining future trends in therapy access are warranted for children with ASD and CP. What this paper adds Children with complex diagnoses of autism spectrum disorder and cerebral palsy had reported unmet need for therapy services. High costs of therapy were the primary reported reason contributing to reduced access among children. Resumen Acceso a servicios de terapias en niños con trastorno del espectro autista, parálisis cerebral y trastorno por déficit de atención e hiperactividad: un estudio poblacional Objetivo Este estudio examinó las tasas poblacionales transversales, sobre las necesidades y necesidades no satisfechas reportadas de servicios de terapia ocupacional, terapia física y de terapia del habla de niños con trastorno del espectro autista (TEA) en comparación con los niños con trastorno por déficit de atención e hiperactividad (TDAH) y parálisis cerebral (PC). Metodologia Se utilizaron los datos de la Encuesta Nacional para Niños con Cuidados Especiales de Salud, de los años 2005‐2006 y 2009‐2010 (EE.UU.), para comparar las necesidades terapéuticas y las necesidades terapéuticas no satisfechas entre niño