Living with schizophrenia: Health‐related quality of life among primary family caregivers

Aims and objectives To examine influencing factors of health‐related quality of life in primary family caregivers of people with schizophrenia receiving inpatient psychiatric rehabilitation services. Background Families, particularly primary family caregivers, have become more important than ever in mental health care. Yet, research on health‐related quality of life among primarily family caregivers is limited. Design A correlational study design was used. Methods A convenience sample of 122 primary family caregivers participated in the study. Data were analysed with descriptive statistics, Pearson's product–moment correlation, t test, one‐way analysis of variance and a hierarchical multiple regression analysis. Results Primary family caregivers who were parents, older, less educated, and had a lower monthly household income, increased affiliate stigma and decreased quality of family‐centred care experienced poor health‐related quality of life. Particularly, monthly household income, affiliate stigma and quality of family‐centred care appeared to be the most critical determinants of health‐related quality of life. Conclusions Efforts to enhance satisfaction of life should focus on reducing affiliate stigma as well as increasing monthly household income and strengthening the quality of family‐centred care. Relevance to clinical practice Findings may assist in the development of culturally integrated rehabilitation programmes to decrease affiliate stigma and increase family engagement as a means of promoting quality of life for primary family caregivers living with people who have schizophrenia.