Rare malignant pediatric tumors registered in the German Childhood Cancer Registry 2001-2010

Background The German Childhood Cancer Registry (GCCR) annually registers approximately 2,000 children diagnosed with a malignant disease (completeness of registration >95%). While most pediatric cancer patients are diagnosed and treated according to standardized cooperative protocols of the Germ...

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Veröffentlicht in:	Pediatric blood & cancer 2014-07, Vol.61 (7), p.1202-1209
Hauptverfasser:	Brecht, Ines B., Bremensdorfer, Claudia, Schneider, Dominik T., Frühwald, Michael C., Offenmüller, Sonja, Mertens, Rolf, Vorwerk, Peter, Koscielniak, Ewa, Bielack, Stefan S., Benesch, Martin, Hero, Barbara, Graf, Norbert, ∨on Schweinitz, Dietrich, Kaatsch, Peter
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent cancer registry Child Child, Preschool epidemiology Female Germany - epidemiology Hematology Humans Infant Male Neoplasms - diagnosis Neoplasms - epidemiology Neoplasms - therapy Oncology orphan disease pediatric oncology Pediatrics Rare Diseases - diagnosis Rare Diseases - epidemiology Rare Diseases - therapy rare tumors Registries Retrospective Studies sarcomas
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Zusammenfassung:	Background The German Childhood Cancer Registry (GCCR) annually registers approximately 2,000 children diagnosed with a malignant disease (completeness of registration >95%). While most pediatric cancer patients are diagnosed and treated according to standardized cooperative protocols of the German Society for Pediatric Oncology and Hematology (GPOH), patients with rare tumors are at risk of not being integrated in the network including trials and reference centers. Procedure A retrospective analysis of all rare extracranial solid tumors reported to the GCCR 2001–2010 (age
ISSN:	1545-5009 1545-5017
DOI:	10.1002/pbc.24997