Development and validation of a patient-reported outcome measure in vitiligo: The Self Assessment Vitiligo Extent Score (SA-VES)

Development and validation of a patient-reported outcome measure in vitiligo: The Self Assessment Vitiligo Extent Score (SA-VES)

Background The Vitiligo Extent Score (VES) has recently been introduced as a physicians' score for the clinical assessment of the extent of vitiligo, but a good patient self-assessment score is lacking. Objective The objective is to develop and validate a simplified version of the VES as a pati...

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Veröffentlicht in:Journal of the American Academy of Dermatology 2017-03, Vol.76 (3), p.464-471
Hauptverfasser: van Geel, Nanja, MD, PhD, Lommerts, Janny E., MD, Bekkenk, Marcel W., MD, PhD, Prinsen, Cecilia A.C., MD, PhD, Eleftheriadou, Viktoria, MD, PhD, Taieb, Alain, MD, PhD, Picardo, Mauro, MD, PhD, Ezzedine, Khaled, MD, PhD, Wolkerstorfer, Albert, MD, PhD, Speeckaert, Reinhart, MD, PhD
Format: Artikel
Sprache:eng
Schlagworte:
Adolescent
Adult
Body Surface Area
Child
Dermatology
Diagnostic Self Evaluation
Feasibility Studies
Female
Humans
Male
Middle Aged
outcome measurement
Patient Reported Outcome Measures
patient-reported outcomes
Pilot Projects
Reproducibility of Results
severity
Severity of Illness Index
vitiligo
Vitiligo - pathology
Young Adult
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Zusammenfassung:Background The Vitiligo Extent Score (VES) has recently been introduced as a physicians' score for the clinical assessment of the extent of vitiligo, but a good patient self-assessment score is lacking. Objective The objective is to develop and validate a simplified version of the VES as a patient-reported outcome measure (PROM). Methods After extensive pilot testing, patients were asked to score their vitiligo extent twice with an interval of 2 weeks using the Self Assessment Vitiligo Extent Score (SA-VES). The scores were compared with the physicians' evaluation (VES). Results The SA-VES demonstrated very good test-retest reliability (intraclass correlation = 0.948, 95% confidence interval [CI]: 0.911-0.970) that was not affected by age, skin type, or vitiligo distribution pattern. According to patients, this evaluation method was easy to use (22% very easy; 49% easy; 29% normal) and required
ISSN:0190-9622
1097-6787
DOI:10.1016/j.jaad.2016.09.034