The experiences of health‐related quality of life in patients with nonspecific symptoms who undergo a diagnostic evaluation for cancer: a qualitative interview study
The diagnostic phase of cancer can affect health‐related quality of life (HRQoL). The aim of this study was to investigate how patients with nonspecific symptoms experience HRQoL while undergoing diagnostic evaluations for cancer. Twenty‐one participants who had completed a fast‐track evaluation for...
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| Veröffentlicht in: | Scandinavian journal of caring sciences 2017-09, Vol.31 (3), p.463-473 |
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| container_title | Scandinavian journal of caring sciences |
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| creator | Moseholm, Ellen Lindhardt, Bjarne Oerskov Rydahl‐Hansen, Susan |
| description | The diagnostic phase of cancer can affect health‐related quality of life (HRQoL). The aim of this study was to investigate how patients with nonspecific symptoms experience HRQoL while undergoing diagnostic evaluations for cancer. Twenty‐one participants who had completed a fast‐track evaluation for possible cancer at one of three hospitals in the Capital Region, Denmark were interviewed 2–4 weeks after completing diagnostic evaluations. The interviews were semi‐structured and were supported by an interview guide based on the same themes as in The European Organisation for Research and Treatment of Cancer Quality of Life questionnaire (EORCT‐QLQ‐C30). Data analysis was based on qualitative content analysis by Krippendorff. The analysis generated six categories: symptoms, physical‐, role‐, emotional‐, cognitive‐ and social functioning, and the diagnostic fast‐track experience. From these categories, a main theme was identified: Health‐related quality of life is not solely affected by the diagnostic process. The results provide a comprehensive understanding of HRQoL in the diagnostic phase of possible cancer, which can be used not only to enhance evidence‐based care, but also in the interpretation of the EORTC‐QLQ‐C30 scores. Psycho‐social support with a focus on individual informational needs during the diagnostic phase may be warranted. |
| doi_str_mv | 10.1111/scs.12359 |
| format | Article |
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The aim of this study was to investigate how patients with nonspecific symptoms experience HRQoL while undergoing diagnostic evaluations for cancer. Twenty‐one participants who had completed a fast‐track evaluation for possible cancer at one of three hospitals in the Capital Region, Denmark were interviewed 2–4 weeks after completing diagnostic evaluations. The interviews were semi‐structured and were supported by an interview guide based on the same themes as in The European Organisation for Research and Treatment of Cancer Quality of Life questionnaire (EORCT‐QLQ‐C30). Data analysis was based on qualitative content analysis by Krippendorff. The analysis generated six categories: symptoms, physical‐, role‐, emotional‐, cognitive‐ and social functioning, and the diagnostic fast‐track experience. From these categories, a main theme was identified: Health‐related quality of life is not solely affected by the diagnostic process. The results provide a comprehensive understanding of HRQoL in the diagnostic phase of possible cancer, which can be used not only to enhance evidence‐based care, but also in the interpretation of the EORTC‐QLQ‐C30 scores. Psycho‐social support with a focus on individual informational needs during the diagnostic phase may be warranted.</description><identifier>ISSN: 0283-9318</identifier><identifier>EISSN: 1471-6712</identifier><identifier>DOI: 10.1111/scs.12359</identifier><identifier>PMID: 27327438</identifier><language>eng</language><publisher>Sweden: Wiley Subscription Services, Inc</publisher><subject>Adult ; Aged ; Aged, 80 and over ; Cancer ; Content analysis ; Denmark ; diagnostic phase ; Female ; Health status ; Hospitals ; Humans ; Interviews as Topic ; Male ; Medical diagnosis ; Middle Aged ; Neoplasms - diagnosis ; Neoplasms - physiopathology ; nonspecific symptoms ; Nursing ; patient experience ; Physical symptoms ; Qualitative Research ; qualitative study ; Quality of Life ; Questionnaires ; Social functioning ; Social support ; Symptoms</subject><ispartof>Scandinavian journal of caring sciences, 2017-09, Vol.31 (3), p.463-473</ispartof><rights>2016 Nordic College of Caring Science</rights><rights>2016 Nordic College of Caring Science.</rights><rights>Copyright © 2017 Nordic College of Caring Science</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3539-51ec873c554161209d0c489d16d776adccf644c32bf34d0297141802c77920fd3</citedby><cites>FETCH-LOGICAL-c3539-51ec873c554161209d0c489d16d776adccf644c32bf34d0297141802c77920fd3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fscs.12359$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fscs.12359$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27903,27904,30978,45553,45554</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/27327438$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Moseholm, Ellen</creatorcontrib><creatorcontrib>Lindhardt, Bjarne Oerskov</creatorcontrib><creatorcontrib>Rydahl‐Hansen, Susan</creatorcontrib><title>The experiences of health‐related quality of life in patients with nonspecific symptoms who undergo a diagnostic evaluation for cancer: a qualitative interview study</title><title>Scandinavian journal of caring sciences</title><addtitle>Scand J Caring Sci</addtitle><description>The diagnostic phase of cancer can affect health‐related quality of life (HRQoL). The aim of this study was to investigate how patients with nonspecific symptoms experience HRQoL while undergoing diagnostic evaluations for cancer. Twenty‐one participants who had completed a fast‐track evaluation for possible cancer at one of three hospitals in the Capital Region, Denmark were interviewed 2–4 weeks after completing diagnostic evaluations. The interviews were semi‐structured and were supported by an interview guide based on the same themes as in The European Organisation for Research and Treatment of Cancer Quality of Life questionnaire (EORCT‐QLQ‐C30). Data analysis was based on qualitative content analysis by Krippendorff. The analysis generated six categories: symptoms, physical‐, role‐, emotional‐, cognitive‐ and social functioning, and the diagnostic fast‐track experience. From these categories, a main theme was identified: Health‐related quality of life is not solely affected by the diagnostic process. The results provide a comprehensive understanding of HRQoL in the diagnostic phase of possible cancer, which can be used not only to enhance evidence‐based care, but also in the interpretation of the EORTC‐QLQ‐C30 scores. Psycho‐social support with a focus on individual informational needs during the diagnostic phase may be warranted.</description><subject>Adult</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Cancer</subject><subject>Content analysis</subject><subject>Denmark</subject><subject>diagnostic phase</subject><subject>Female</subject><subject>Health status</subject><subject>Hospitals</subject><subject>Humans</subject><subject>Interviews as Topic</subject><subject>Male</subject><subject>Medical diagnosis</subject><subject>Middle Aged</subject><subject>Neoplasms - diagnosis</subject><subject>Neoplasms - physiopathology</subject><subject>nonspecific symptoms</subject><subject>Nursing</subject><subject>patient experience</subject><subject>Physical symptoms</subject><subject>Qualitative Research</subject><subject>qualitative study</subject><subject>Quality of Life</subject><subject>Questionnaires</subject><subject>Social functioning</subject><subject>Social support</subject><subject>Symptoms</subject><issn>0283-9318</issn><issn>1471-6712</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kU1u1TAUhS0Eoo_CgA0gS0xgkNY_SZwwQ0_8VKrUQcvYcu2bxpUTp7bzHpmxBHbBvlgJfk1hgNQ7uYPz3XMsH4ReU3JC85xGHU8o41X7BG1oKWhRC8qeog1hDS9aTpsj9CLGW0JIVRH6HB0xwZkoebNBv656wPB9gmBh1BCx73APyqX-94-fAZxKYPDdrJxNy0FztgNsRzyplA9SxHubejz6MU6gbWc1jsswJT9kpfd4Hg2EG48VNlbdjD6mTMBOuTnf-xF3PmCtcnD4kJk1Jyu7Q0aCsLOwxzHNZnmJnnXKRXj1sI_Rt8-frrZfi_OLL2fbj-eF5hVvi4qCbgTXVVXSmjLSGqLLpjW0NkLUymjd1WWpObvueGkIawUtaUOYFqJlpDP8GL1bfafg72aISQ42anBOjeDnKGnDakHyJ7OMvv0PvfVzGPPrJG1LwWvR0CpT71dKBx9jgE5OwQ4qLJISeWhP5vbkfXuZffPgOF8PYP6Rf-vKwOkK7K2D5XEnebm9XC3_AMT_p2o</recordid><startdate>201709</startdate><enddate>201709</enddate><creator>Moseholm, Ellen</creator><creator>Lindhardt, Bjarne Oerskov</creator><creator>Rydahl‐Hansen, Susan</creator><general>Wiley Subscription Services, Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>201709</creationdate><title>The experiences of health‐related quality of life in patients with nonspecific symptoms who undergo a diagnostic evaluation for cancer: a qualitative interview study</title><author>Moseholm, Ellen ; Lindhardt, Bjarne Oerskov ; Rydahl‐Hansen, Susan</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3539-51ec873c554161209d0c489d16d776adccf644c32bf34d0297141802c77920fd3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Adult</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Cancer</topic><topic>Content analysis</topic><topic>Denmark</topic><topic>diagnostic phase</topic><topic>Female</topic><topic>Health status</topic><topic>Hospitals</topic><topic>Humans</topic><topic>Interviews as Topic</topic><topic>Male</topic><topic>Medical diagnosis</topic><topic>Middle Aged</topic><topic>Neoplasms - diagnosis</topic><topic>Neoplasms - physiopathology</topic><topic>nonspecific symptoms</topic><topic>Nursing</topic><topic>patient experience</topic><topic>Physical symptoms</topic><topic>Qualitative Research</topic><topic>qualitative study</topic><topic>Quality of Life</topic><topic>Questionnaires</topic><topic>Social functioning</topic><topic>Social support</topic><topic>Symptoms</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Moseholm, Ellen</creatorcontrib><creatorcontrib>Lindhardt, Bjarne Oerskov</creatorcontrib><creatorcontrib>Rydahl‐Hansen, Susan</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Scandinavian journal of caring sciences</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Moseholm, Ellen</au><au>Lindhardt, Bjarne Oerskov</au><au>Rydahl‐Hansen, Susan</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The experiences of health‐related quality of life in patients with nonspecific symptoms who undergo a diagnostic evaluation for cancer: a qualitative interview study</atitle><jtitle>Scandinavian journal of caring sciences</jtitle><addtitle>Scand J Caring Sci</addtitle><date>2017-09</date><risdate>2017</risdate><volume>31</volume><issue>3</issue><spage>463</spage><epage>473</epage><pages>463-473</pages><issn>0283-9318</issn><eissn>1471-6712</eissn><abstract>The diagnostic phase of cancer can affect health‐related quality of life (HRQoL). The aim of this study was to investigate how patients with nonspecific symptoms experience HRQoL while undergoing diagnostic evaluations for cancer. Twenty‐one participants who had completed a fast‐track evaluation for possible cancer at one of three hospitals in the Capital Region, Denmark were interviewed 2–4 weeks after completing diagnostic evaluations. The interviews were semi‐structured and were supported by an interview guide based on the same themes as in The European Organisation for Research and Treatment of Cancer Quality of Life questionnaire (EORCT‐QLQ‐C30). Data analysis was based on qualitative content analysis by Krippendorff. The analysis generated six categories: symptoms, physical‐, role‐, emotional‐, cognitive‐ and social functioning, and the diagnostic fast‐track experience. From these categories, a main theme was identified: Health‐related quality of life is not solely affected by the diagnostic process. The results provide a comprehensive understanding of HRQoL in the diagnostic phase of possible cancer, which can be used not only to enhance evidence‐based care, but also in the interpretation of the EORTC‐QLQ‐C30 scores. Psycho‐social support with a focus on individual informational needs during the diagnostic phase may be warranted.</abstract><cop>Sweden</cop><pub>Wiley Subscription Services, Inc</pub><pmid>27327438</pmid><doi>10.1111/scs.12359</doi><tpages>11</tpages></addata></record> |
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| subjects | Adult Aged Aged, 80 and over Cancer Content analysis Denmark diagnostic phase Female Health status Hospitals Humans Interviews as Topic Male Medical diagnosis Middle Aged Neoplasms - diagnosis Neoplasms - physiopathology nonspecific symptoms Nursing patient experience Physical symptoms Qualitative Research qualitative study Quality of Life Questionnaires Social functioning Social support Symptoms |
| title | The experiences of health‐related quality of life in patients with nonspecific symptoms who undergo a diagnostic evaluation for cancer: a qualitative interview study |
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