Information needs among adolescent bariatric surgery patients and their caregivers

Abstract Background Bariatric surgery is an invasive medical treatment for morbid obesity that requires behavioral maintenance for physical success. Patient knowledge, motivation, and adherence are important factors in optimizing results. Objectives The purpose of the present study was to identify perceived informational gaps of adolescent and young adult bariatric surgery patients with morbid obesity (body mass index≥40 kg/m2 ). Setting This study took place in a pediatric tertiary care academic medical center. Methods Thirty-one adolescents/young adults who had undergone Roux-en-Y gastric bypass surgery at the authors’ institution were recruited to complete questionnaires at their postsurgical visits (≥3 months postsurgery). Seventeen caregivers also participated in this study. The questionnaire used in the present study prompted patients and caregivers to reflect on information they wish they had known before surgery; questionnaire items included multiple choice and open-ended questions. Results Participants indicated that their informational needs were generally well met before surgery, although there were more needs noted by patients than by caregivers. Adolescent/young adult participants expressed a desire to have had more information about the necessity of taking vitamins daily and about having more gas. An association between informational needs and satisfaction was also found. Qualitative data revealed the importance of conveying cognitive-behavioral aspects of surgery to families (e.g., adherence, motivation). Conclusion Despite most patients and caregivers being satisfied with the adolescent bariatric surgery program at the authors’ institution, informational gaps exist. Teen-friendly ways to disseminate information would be helpful in influencing patients’ satisfaction.