Providing information about late effects after childhood cancer: Lymphoma survivors’ preferences for what, how and when

Highlights • Childhood cancer survivors need information about treatment-related late effects LE. • Adult survivors’ preferences for LE information was explored in focus-groups. • LE information should be individualized and well timed to reduce survivor anxiety. • The survivors preferred receiving e...

Ausführliche Beschreibung

Gespeichert in:

Bibliographische Detailangaben
Veröffentlicht in:	Patient education and counseling 2015-05, Vol.98 (5), p.604-611
Hauptverfasser:	Lie, Hanne C, Loge, Jon H, Fosså, Sophie D, Hamre, Hanne M, Hess, Siri L, Mellblom, Anneli V, Ruud, Ellen, Finset, Arnstein
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Adult Antineoplastic Agents - adverse effects Antineoplastic Agents - therapeutic use Childhood cancer survivors Communication Drug-Related Side Effects and Adverse Reactions - psychology Female Focus Groups Health Knowledge, Attitudes, Practice Humans Internal Medicine Interviews as Topic Late effects Long Term Adverse Effects - etiology Long Term Adverse Effects - psychology Lymphoma - rehabilitation Lymphoma - therapy Male Needs Assessment Nursing Patient education Patient Education as Topic - methods Patient Preference Patient-perspective Physician-Patient Relations Providing information Survivors - psychology Young Adult
Online-Zugang:	Volltext
Tags:	Tag hinzufügen Keine Tags, Fügen Sie den ersten Tag hinzu!

Beschreibung
Zusammenfassung:	Highlights • Childhood cancer survivors need information about treatment-related late effects LE. • Adult survivors’ preferences for LE information was explored in focus-groups. • LE information should be individualized and well timed to reduce survivor anxiety. • The survivors preferred receiving extensive LE information when older (e.g. age 25). • Many showed ambivalence towards receiving LE information when feeling healthy. • Suggestions for what, how and when LE information should be provided is presented.
ISSN:	0738-3991 1873-5134
DOI:	10.1016/j.pec.2015.01.016