If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis

Objective With increasing European cancer deaths, clinicians must manage information regarding poor prognosis. This study aimed to determine European citizens' preferences, within a scenario of serious illness such as cancer with less than a year to live, for information disclosure regarding po...

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Veröffentlicht in:Psycho-oncology (Chichester, England) England), 2013-10, Vol.22 (10), p.2298-2305
Hauptverfasser: Harding, R., Simms, V., Calanzani, N., Higginson, I. J., Hall, S., Gysels, M., Meñaca, A., Bausewein, C., Deliens, L., Ferreira, P., Toscani, F., Daveson, B. A., Ceulemans, L., Gomes, B.
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Sprache:eng
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Zusammenfassung:Objective With increasing European cancer deaths, clinicians must manage information regarding poor prognosis. This study aimed to determine European citizens' preferences, within a scenario of serious illness such as cancer with less than a year to live, for information disclosure regarding poor prognosis, the likely symptoms and problems, and the care options available, to measure variations between countries and to identify factors associated with preferences. Methods A population‐based cross‐national telephone survey using random digit dialling in seven countries was conducted. Results Among 9344 respondents, data revealed an international preference (73.9%) to always be informed in the scenario of having a serious illness such as cancer with less than a year to live. This varied from 67.6% in Italy to 80.7% in Flanders. A minority (21.1%) did not want such information unless they ask, or at all. People younger than 70 years (OR 0.72, 95% CI 0.62–0.83, p 
ISSN:1057-9249
1099-1611
DOI:10.1002/pon.3283