Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics

Summary Psychosocial factors have a significant impact on the quality of life of persons with haemophilia (PWH). The Haemophilia Experiences, Results and Opportunities (HERO) initiative was developed to provide a greater understanding of the psychological components which influence the lives of PWH....

Ausführliche Beschreibung

Gespeichert in:

Bibliographische Detailangaben
Veröffentlicht in:	Haemophilia : the official journal of the World Federation of Hemophilia 2014-01, Vol.20 (1), p.44-51
Hauptverfasser:	Forsyth, A. L., Gregory, M., Nugent, D., Garrido, C., Pilgaard, T., Cooper, D. L., Iorio, A.
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Adult Aged Aged, 80 and over Comorbidity Global Health haemophilia Health Surveys health-related quality of life Hemophilia A - epidemiology Hemophilia A - psychology Hemophilia B - epidemiology Hemophilia B - psychology Humans Internet Middle Aged psychosocial Quality of Life Surveys and Questionnaires Young Adult
Online-Zugang:	Volltext
Tags:	Tag hinzufügen Keine Tags, Fügen Sie den ersten Tag hinzu!

Beschreibung
Zusammenfassung:	Summary Psychosocial factors have a significant impact on the quality of life of persons with haemophilia (PWH). The Haemophilia Experiences, Results and Opportunities (HERO) initiative was developed to provide a greater understanding of the psychological components which influence the lives of PWH. This article describes the HERO methodology and the characteristics of respondents. Two online surveys (one for adult PWH ≥18 years and one for parents of children
ISSN:	1351-8216 1365-2516
DOI:	10.1111/hae.12239