Health-related quality of life and disease-specific complaints among multiple myeloma patients up to 10 yr after diagnosis: results from a population-based study using the PROFILES registry

Background This prospective population‐based study describes health‐related quality of life (HRQOL) and disease‐specific complaints of patients with multiple myeloma (MM) up to 10 yr post‐diagnosis. Methods The Eindhoven Cancer Registry was used to select all patients diagnosed with MM from 1999 to 2010. Patients with MM completed the EORTC QLQ‐C30 and EORTC QLQ‐MY20 questionnaires at baseline (n = 156; 74% response rate) and 1 yr later (n = 80). The EORTC QLQ‐C30 was also completed by an age‐ and sex‐matched normative population (n = 500). Results Patients with MM reported statistically significant and clinically relevant worse scores on all EORTC QLQ‐C30 scales (all P's at least