Korean Observational Study Network for Arthritis (KORONA): Establishment of a Prospective Multicenter Cohort for Rheumatoid Arthritis in South Korea

Objectives The object of this study was to introduce the KORean Observational study Network for Arthritis (KORONA) registry with an emphasis on the design of the Korean rheumatoid arthritis (RA) national database, as well as to provide an overview of the RA patients who are currently registered in K...

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Veröffentlicht in:	Seminars in arthritis and rheumatism 2012-06, Vol.41 (6), p.745-751
Hauptverfasser:	Sung, Yoon-Kyoung, MD, PhD, MPH, Cho, Soo-Kyung, MD, PhD, Choi, Chan-Bum, MD, PhD, Park, So-Yeon, MD, Shim, Jeeseon, PhD, Ahn, Joong Kyong, MD, PhD, Bang, So-Young, MD, PhD, Cha, Hoon-Suk, MD, PhD, Choe, Jung-Yoon, MD, PhD, Chung, Won Tae, MD, PhD, Her, Minyoung, MD, Hong, Seung-Jae, MD, PhD, Hong, Yun Kyung, MD, PhD, Joung, Chung-Il, MD, PhD, Jun, Jae-Bum, MD, PhD, Jung, Young Ok, MD, PhD, Kang, Young Mo, MD, PhD, Kim, Dong-Yook, MD, PhD, Kim, Hae-Rim, MD, PhD, Kim, Hyoun Ah, MD, PhD, Kim, Jinseok, MD, PhD, Kim, Seong-Kyu, MD, PhD, Kim, Sung-Il, MD, PhD, Kim, Tae-Hwan, MD, PhD, Kim, Tae-Jong, MD, PhD, Koh, Eunmi, MD, PhD, Lee, Choong Ki, MD, PhD, Lee, Hye-Soon, MD, PhD, Lee, Jisoo, MD, PhD, Lee, Sang-Heon, MD, PhD, Lee, Sang-Hoon, MD, PhD, Lee, Shin-Seok, MD, PhD, Lee, Sung Won, MD, PhD, Lee, Yeon-Ah, MD, PhD, Nah, Seong-Su, MD, PhD, Park, Sung-Hoon, MD, PhD, Sheen, Dong Hyuk, MD, PhD, Shim, Seung-Cheol, MD, PhD, Gyu Song, Gwan, MD, PhD, Suh, Chang-Hee, MD, PhD, Uhm, Wan-Sik, MD, PhD, Yoo, Dae-Hyun, MD, PhD, Yoo, Wan-Hee, MD, PhD, Yoon, Bo Young, MD, PhD, Bae, Sang-Cheol, MD, PhD, MPH
Format:	Artikel
Sprache:	eng
Schlagworte:	Adult Aged Aged, 80 and over Antirheumatic Agents - therapeutic use Arthritis, Rheumatoid - diagnosis Arthritis, Rheumatoid - drug therapy Biological and medical sciences Cohort Studies cohort study Databases, Factual Diseases of the osteoarticular system Female Humans Inflammatory joint diseases Male Medical sciences Middle Aged Miscellaneous. Osteoarticular involvement in other diseases Prospective Studies prospective study Registries Republic of Korea Research Design rheumatoid arthritis Rheumatology
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Zusammenfassung:	Objectives The object of this study was to introduce the KORean Observational study Network for Arthritis (KORONA) registry with an emphasis on the design of the Korean rheumatoid arthritis (RA) national database, as well as to provide an overview of the RA patients who are currently registered in KORONA. Methods The KORONA was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA) in South Korea. KORONA is based on a prospective protocol and standard, defined data collection instruments. Demographic and clinical features, laboratory and radiologic data, health-related outcomes, treatment side effects, resource utilization, and health behaviors of the RA cohort patients are recorded in a database. Results A total of 23 institutions, which are about 38% of the rheumatologic departments at tertiary academic hospitals across South Korea, are part of KORONA. The quality control of data collection and management has been performed through annual monitoring and auditing, staff training, and providing standard operation protocol by the executive committee of CRCRA. As of 31 December 2010, 4721 patients with established RA were included in KORONA, because an annual survey had started to be performed in July 2010. Conclusions KORONA is the first nationwide Korean RA-specific cohort and it will provide valuable “real-world” information for Korean RA patients.
ISSN:	0049-0172 1532-866X
DOI:	10.1016/j.semarthrit.2011.09.007