Transition readiness in adolescents with juvenile idiopathic arthritis and their parents: Our single-center experience

Objectives: We aimed to identify characteristics of juvenile idiopathic arthritis (JIA) patients associated with good self-management skills in the transition readiness process and to investigate the readiness of JIA patients and their families for the transition into the adult healthcare system. Pa...

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Veröffentlicht in:ARCHIVES OF RHEUMATOLOGY 2022-09, Vol.37 (3), p.411-416
Hauptverfasser: Lazarevic, Dragana, Dordevic, Stefan, Novakovic, Dusica, Zecevic, Maja, Sucic, Gordana
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Sprache:eng
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Zusammenfassung:Objectives: We aimed to identify characteristics of juvenile idiopathic arthritis (JIA) patients associated with good self-management skills in the transition readiness process and to investigate the readiness of JIA patients and their families for the transition into the adult healthcare system. Patients and methods: Between March 2021 and June 2021, a total of 44 JIA patients (9 males, 35 females; median age: 15.1 years; range, 12.3 to 19.3 years) admitted to the pediatric rheumatology outpatient and inpatient clinics and their parents were included. Transition Readiness Assessment Questionnaire (TRAQ) was cross-culturally adapted. The TRAQ was administered to all JIA patients and their parents at one point. Demographic and clinical data were collected. Results: Fourteen (31.8%) of 44 JIA patients had a concomitant disease, while 10 (22.7%) of them had uveitis. Eleven (25%) of them had a family history of autoimmune diseases. In total, 21 (47.7%) of JIA patients were receiving biologics. There was a strong correlation between older age and total TRAQ scores among patients (rho =0.799, p
ISSN:2148-5046
1309-0291
2618-6500
1309-0283
DOI:10.46497/ArchRheumatol.2022.9219