Assessing hospitalized patients’ quality of life from external indices: the perspectives of lay people and health professionals

Purpose We examined the way people assess hospitalized patients’ quality of life from what they immediately observe when entering the patient’s room, from what they learn by conversing with the patient, and from what they know about the patient’s social life. Methods A sample of 474 adults (among them 7 physicians, 57 nurses, and 42 nurse’s aides) aged 18–90 years was presented with 54 realistic scenarios depicting the situation of a terminally ill patient, and created by orthogonally combining the levels of four factors: chronic pain (e.g., requiring powerful painkillers), social support (e.g., some visits), mental status (e.g., alterations of consciousness), and physical autonomy. In each case, they assessed the patient’s health-related quality of life. Results Through cluster analysis, three different positions related to what is important when judging the quality of life of a hospitalized patient were found. They were labeled Almost Always Low (40%), Depends on Personal and Social Circumstances (49%), and Depends Mainly on Social Support (11%). Health professionals did not differ fundamentally from lay people in their positions regarding what determines the health-related quality of life of their patients. Conclusion Many people take a particularly pessimistic view of the quality of life of people whose health is unlikely to improve. Others think that, in certain circumstances, a certain quality of life can be preserved but for this to happen, the situation must be nearly ideal. A minority expressed a position consistent with the insistence of voluntary patient-visiting associations on the importance of providing hospitalized patients with social support.