Exploring parental perspectives after commencement of flash glucose monitoring for type 1 diabetes in adolescents and young adults not meeting glycaemic targets: a qualitative study

Aims To explore parental perspectives after flash glucose monitoring commencement in adolescents and young adults with type 1 diabetes who were not meeting glycaemic targets. Methods Twelve semi‐structured interviews were conducted among parents of adolescents and young adults between the ages of 14...

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Veröffentlicht in:Diabetic medicine 2020-04, Vol.37 (4), p.657-664
Hauptverfasser: Boucher, S. E., Aum, S. Hye, Crocket, H. R., Wiltshire, E. J., Tomlinson, P. A., Bock, M. I., Wheeler, B. J.
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container_end_page 664
container_issue 4
container_start_page 657
container_title Diabetic medicine
container_volume 37
creator Boucher, S. E.
Aum, S. Hye
Crocket, H. R.
Wiltshire, E. J.
Tomlinson, P. A.
Bock, M. I.
Wheeler, B. J.
description Aims To explore parental perspectives after flash glucose monitoring commencement in adolescents and young adults with type 1 diabetes who were not meeting glycaemic targets. Methods Twelve semi‐structured interviews were conducted among parents of adolescents and young adults between the ages of 14 and 20 years (inclusive) with type 1 diabetes and not meeting glycaemic targets [HbA1c 81–130 mmol/mol (9.6–14.0%)] participating in a randomized controlled trial. Interviews were transcribed, then thematic analysis was performed to identify themes regarding parental experiences. Results Four key themes were found: flash glucose monitoring improved parental emotional well‐being; flash glucose monitoring reduced diabetes‐specific conflict within families; flash glucose monitoring facilitated the parental role in diabetes management; and sensor‐related challenges, particularly sensors falling off, interfered with using flash glucose monitoring for diabetes management. The cost of self‐funded sensors was the only barrier to continuing flash glucose monitoring that parents reported. Conclusions This study provides new insights into the potential benefits and challenges of flash glucose monitoring use, drawn from the perspective of parents of adolescents and young adults not meeting glycaemic targets. As parents are often key partners in obtaining or purchasing this technology, these findings can be used to further inform parental expectations of this technology. What's new? This study is the first to report on qualitative data regarding parental experiences of flash glucose monitoring in parents of adolescents and young adults not meeting glycaemic targets. Parents reported reduced diabetes‐specific conflict and reduced diabetes‐specific worry since their adolescent or young adult began flash glucose monitoring, with some parents reducing their role in diabetes care. Sensor loss was the most commonly reported challenge to using flash glucose monitoring technology. Parents may need education on how to continue being involved with adolescents’ and young adults’ diabetes care while using this technology. Families may benefit from strategies to reduce sensor failure.
doi_str_mv 10.1111/dme.14188
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E. ; Aum, S. Hye ; Crocket, H. R. ; Wiltshire, E. J. ; Tomlinson, P. A. ; Bock, M. I. ; Wheeler, B. J.</creator><creatorcontrib>Boucher, S. E. ; Aum, S. Hye ; Crocket, H. R. ; Wiltshire, E. J. ; Tomlinson, P. A. ; Bock, M. I. ; Wheeler, B. J.</creatorcontrib><description>Aims To explore parental perspectives after flash glucose monitoring commencement in adolescents and young adults with type 1 diabetes who were not meeting glycaemic targets. Methods Twelve semi‐structured interviews were conducted among parents of adolescents and young adults between the ages of 14 and 20 years (inclusive) with type 1 diabetes and not meeting glycaemic targets [HbA1c 81–130 mmol/mol (9.6–14.0%)] participating in a randomized controlled trial. Interviews were transcribed, then thematic analysis was performed to identify themes regarding parental experiences. Results Four key themes were found: flash glucose monitoring improved parental emotional well‐being; flash glucose monitoring reduced diabetes‐specific conflict within families; flash glucose monitoring facilitated the parental role in diabetes management; and sensor‐related challenges, particularly sensors falling off, interfered with using flash glucose monitoring for diabetes management. The cost of self‐funded sensors was the only barrier to continuing flash glucose monitoring that parents reported. Conclusions This study provides new insights into the potential benefits and challenges of flash glucose monitoring use, drawn from the perspective of parents of adolescents and young adults not meeting glycaemic targets. As parents are often key partners in obtaining or purchasing this technology, these findings can be used to further inform parental expectations of this technology. What's new? This study is the first to report on qualitative data regarding parental experiences of flash glucose monitoring in parents of adolescents and young adults not meeting glycaemic targets. Parents reported reduced diabetes‐specific conflict and reduced diabetes‐specific worry since their adolescent or young adult began flash glucose monitoring, with some parents reducing their role in diabetes care. Sensor loss was the most commonly reported challenge to using flash glucose monitoring technology. Parents may need education on how to continue being involved with adolescents’ and young adults’ diabetes care while using this technology. Families may benefit from strategies to reduce sensor failure.</description><identifier>ISSN: 0742-3071</identifier><identifier>EISSN: 1464-5491</identifier><identifier>DOI: 10.1111/dme.14188</identifier><identifier>PMID: 31769551</identifier><language>eng</language><publisher>England: Wiley Subscription Services, Inc</publisher><subject>Adolescents ; Diabetes ; Diabetes mellitus (insulin dependent) ; Glucose ; Glucose monitoring ; Qualitative research ; Sensors ; Teenagers ; Well being ; Young adults</subject><ispartof>Diabetic medicine, 2020-04, Vol.37 (4), p.657-664</ispartof><rights>2019 Diabetes UK</rights><rights>2019 Diabetes UK.</rights><rights>Diabetic Medicine © 2020 Diabetes UK</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3208-5eab2f1a8e8d1f2aa046a531c9babc7dfb75000b86560907e6dbf17c5892ef9b3</citedby><cites>FETCH-LOGICAL-c3208-5eab2f1a8e8d1f2aa046a531c9babc7dfb75000b86560907e6dbf17c5892ef9b3</cites><orcidid>0000-0002-7134-6776 ; 0000-0002-8962-2708 ; 0000-0003-3348-5238 ; 0000-0002-8358-881X</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fdme.14188$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fdme.14188$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/31769551$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Boucher, S. E.</creatorcontrib><creatorcontrib>Aum, S. Hye</creatorcontrib><creatorcontrib>Crocket, H. R.</creatorcontrib><creatorcontrib>Wiltshire, E. J.</creatorcontrib><creatorcontrib>Tomlinson, P. A.</creatorcontrib><creatorcontrib>Bock, M. I.</creatorcontrib><creatorcontrib>Wheeler, B. J.</creatorcontrib><title>Exploring parental perspectives after commencement of flash glucose monitoring for type 1 diabetes in adolescents and young adults not meeting glycaemic targets: a qualitative study</title><title>Diabetic medicine</title><addtitle>Diabet Med</addtitle><description>Aims To explore parental perspectives after flash glucose monitoring commencement in adolescents and young adults with type 1 diabetes who were not meeting glycaemic targets. Methods Twelve semi‐structured interviews were conducted among parents of adolescents and young adults between the ages of 14 and 20 years (inclusive) with type 1 diabetes and not meeting glycaemic targets [HbA1c 81–130 mmol/mol (9.6–14.0%)] participating in a randomized controlled trial. Interviews were transcribed, then thematic analysis was performed to identify themes regarding parental experiences. Results Four key themes were found: flash glucose monitoring improved parental emotional well‐being; flash glucose monitoring reduced diabetes‐specific conflict within families; flash glucose monitoring facilitated the parental role in diabetes management; and sensor‐related challenges, particularly sensors falling off, interfered with using flash glucose monitoring for diabetes management. The cost of self‐funded sensors was the only barrier to continuing flash glucose monitoring that parents reported. Conclusions This study provides new insights into the potential benefits and challenges of flash glucose monitoring use, drawn from the perspective of parents of adolescents and young adults not meeting glycaemic targets. As parents are often key partners in obtaining or purchasing this technology, these findings can be used to further inform parental expectations of this technology. What's new? This study is the first to report on qualitative data regarding parental experiences of flash glucose monitoring in parents of adolescents and young adults not meeting glycaemic targets. Parents reported reduced diabetes‐specific conflict and reduced diabetes‐specific worry since their adolescent or young adult began flash glucose monitoring, with some parents reducing their role in diabetes care. Sensor loss was the most commonly reported challenge to using flash glucose monitoring technology. Parents may need education on how to continue being involved with adolescents’ and young adults’ diabetes care while using this technology. 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J.</creatorcontrib><collection>PubMed</collection><collection>CrossRef</collection><collection>Immunology Abstracts</collection><collection>Technology Research Database</collection><collection>Engineering Research Database</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>ProQuest Health &amp; Medical Complete (Alumni)</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>Genetics Abstracts</collection><jtitle>Diabetic medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Boucher, S. E.</au><au>Aum, S. Hye</au><au>Crocket, H. R.</au><au>Wiltshire, E. J.</au><au>Tomlinson, P. A.</au><au>Bock, M. I.</au><au>Wheeler, B. J.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Exploring parental perspectives after commencement of flash glucose monitoring for type 1 diabetes in adolescents and young adults not meeting glycaemic targets: a qualitative study</atitle><jtitle>Diabetic medicine</jtitle><addtitle>Diabet Med</addtitle><date>2020-04</date><risdate>2020</risdate><volume>37</volume><issue>4</issue><spage>657</spage><epage>664</epage><pages>657-664</pages><issn>0742-3071</issn><eissn>1464-5491</eissn><abstract>Aims To explore parental perspectives after flash glucose monitoring commencement in adolescents and young adults with type 1 diabetes who were not meeting glycaemic targets. Methods Twelve semi‐structured interviews were conducted among parents of adolescents and young adults between the ages of 14 and 20 years (inclusive) with type 1 diabetes and not meeting glycaemic targets [HbA1c 81–130 mmol/mol (9.6–14.0%)] participating in a randomized controlled trial. Interviews were transcribed, then thematic analysis was performed to identify themes regarding parental experiences. Results Four key themes were found: flash glucose monitoring improved parental emotional well‐being; flash glucose monitoring reduced diabetes‐specific conflict within families; flash glucose monitoring facilitated the parental role in diabetes management; and sensor‐related challenges, particularly sensors falling off, interfered with using flash glucose monitoring for diabetes management. The cost of self‐funded sensors was the only barrier to continuing flash glucose monitoring that parents reported. Conclusions This study provides new insights into the potential benefits and challenges of flash glucose monitoring use, drawn from the perspective of parents of adolescents and young adults not meeting glycaemic targets. As parents are often key partners in obtaining or purchasing this technology, these findings can be used to further inform parental expectations of this technology. What's new? This study is the first to report on qualitative data regarding parental experiences of flash glucose monitoring in parents of adolescents and young adults not meeting glycaemic targets. Parents reported reduced diabetes‐specific conflict and reduced diabetes‐specific worry since their adolescent or young adult began flash glucose monitoring, with some parents reducing their role in diabetes care. Sensor loss was the most commonly reported challenge to using flash glucose monitoring technology. Parents may need education on how to continue being involved with adolescents’ and young adults’ diabetes care while using this technology. Families may benefit from strategies to reduce sensor failure.</abstract><cop>England</cop><pub>Wiley Subscription Services, Inc</pub><pmid>31769551</pmid><doi>10.1111/dme.14188</doi><tpages>8</tpages><orcidid>https://orcid.org/0000-0002-7134-6776</orcidid><orcidid>https://orcid.org/0000-0002-8962-2708</orcidid><orcidid>https://orcid.org/0000-0003-3348-5238</orcidid><orcidid>https://orcid.org/0000-0002-8358-881X</orcidid></addata></record>
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source Wiley Online Library Journals Frontfile Complete
subjects Adolescents
Diabetes
Diabetes mellitus (insulin dependent)
Glucose
Glucose monitoring
Qualitative research
Sensors
Teenagers
Well being
Young adults
title Exploring parental perspectives after commencement of flash glucose monitoring for type 1 diabetes in adolescents and young adults not meeting glycaemic targets: a qualitative study
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